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SUBJECTIVE LIFE EXPERIENCES OF FAMILY CAREGIVERS OF DEPENDENT OLDER ADULTS / VIVÊNCIAS SUBJETIVAS DE FAMILIARES QUE CUIDAM DE IDOSOS DEPENDENTES
Preprint
in Portuguese
| SciELO Preprints
| ID: pps-1258
Responsible library:
BR1.1
ABSTRACT
This study aimed to understand the subjective meanings attributed to home care by family caregivers of dependent older adults through a multicenter qualitative investigation that gathered 84 in-depth interviews with family caregivers from eight Brazilian locations. The hermeneutic-dialectic, theoretical, methodological framework was employed. The following categories emerged from the analysis:
1. Movements inhibiting emotions and feelings; 2. Presence of processes of symbiosis and emotional dependence in the older adult-relative relationship; 3. Contentment in caring for the dependent older adult; and 4. Giving up current and future life projects. The results reveal life experiences marked by symbiotic processes, emotional dependence, and psychic stress. Dependence causes suffering and feelings of despair, powerlessness, impatience, but also solidarity and empathy. Withdrawal from the job market, social depreciation of family caregiver's activity, social isolation, neglected self-care, and family conflicts impact caregivers' subjectivity. The elaboration of public policies must consider the social-affective life experiences of family caregivers of dependent older adults in order to include the care of those providing care.RESUMO
Objetivou-se compreender os sentidos subjetivos atribuídos pelos cuidadores familiares de idosos dependentes ao cuidado ofertado no domicílio, por meio de uma investigação qualitativa multicêntrica que reúne entrevistas em profundidade com 84 cuidadores familiares em oito localidades no Brasil. Utilizou-se o referencial teórico metodológico hermenêutico-dialético. Na leitura das entrevistas emergiram as seguintes categorias que serviram de base para as análises 1. Movimentos de inibição de emoções e sentimentos; 2. Presença de processos de simbiose e de dependência emocional na relação idoso e familiar; 3. Contentamento em cuidar do idoso dependente e 4. Renúncia a projetos de vida atuais e futuros. Os resultados apontam vivências marcadas por processos de simbiose, dependência emocional e estresse psíquico. A dependência gera sofrimento e sentimentos de desespero, impotência, impaciência, mas também solidariedade e empatia. A renúncia ao trabalho profissional, a desvalorização social da atividade de cuidador familiar, o isolamento social, o cuidado "descuidado" de si e conflitos familiares influenciam a subjetividade dos cuidadores. A formulação de políticas públicas precisa considerar as vivências socioafetivas dos cuidadores familiares de idosos dependentes para nelas incluir o cuidado de quem cuida.
Full text:
Available
Collection:
Preprints
Database:
SciELO Preprints
Type of study:
Controlled clinical trial
/
Qualitative research
Language:
Portuguese
Year:
2020
Document type:
Preprint