Caregivers of individuals with Rubinstein-Taybi syndrome: Perspectives, experiences, and relationships with medical professionals.

Webster, Joshua; Wiley, Susan; Schorry, Elizabeth; Bowers, Katherine; Collins Ruff, Kathleen; Riddle, Ilka

Webster, Joshua; Wiley, Susan; Schorry, Elizabeth; Bowers, Katherine; Collins Ruff, Kathleen; Riddle, Ilka.

Afiliación

Webster J; Division of Human Genetics, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
Wiley S; College of Medicine, University of Cincinnati, Cincinnati, OH, USA.
Schorry E; Division of Developmental and Behavioral Pediatrics, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
Bowers K; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA.
Collins Ruff K; Division of Human Genetics, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
Riddle I; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA.

J Genet Couns ; 31(1): 153-163, 2022 02.

Article en En | MEDLINE | ID: mdl-34218493

Asunto(s)

Cuidadores; Síndrome de Rubinstein-Taybi; Adulto; Niño; Comunicación; Personal de Salud; Humanos; Padres

Palabras clave

caregivers; family; lived experience; parents

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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Síndrome de Rubinstein-Taybi / Cuidadores Tipo de estudio: Qualitative_research Límite: Adult / Child / Humans Idioma: En Revista: J Genet Couns Asunto de la revista: GENETICA MEDICA Año: 2022 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Estados Unidos

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