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The added value of a European Reference Network on rare and complex connective tissue and musculoskeletal diseases: insights after the first 5 years of the ERN ReCONNET.
Talarico, Rosaria; Aguilera, Silvia; Alexander, Tobias; Amoura, Zahir; Andersen, Janette; Arnaud, Laurent; Avcin, Tadej; Marsal Barril, Sara; Beretta, Lorenzo; Bombardieri, Stefano; Bortoluzzi, Alessandra; Bouillot, Coralie; Bulina, Inita; Burmester, Gerd R; Cannizzo, Sara; Cavagna, Lorenzo; Chaigne, Benjamin; Cornet, Alain; Corti, Paolo; Costedoat-Chalumeau, Nathalie; Davidsone, Zane; Doria, Andrea; Fenech, Carol; Ferraris, Alessandro; Fischer-Betz, Rebecca; Fonseca, João Eurico; Frank, Charissa; Gaglioti, Andrea; Galetti, Ilaria; Guimarães, Vera; Hachulla, Eric; Holmner, Monica; Houssiau, Frederic; Iaccarino, Luca; Jacobsen, Søren; Limper, Maarten; Malfait, Fransiska; Mariette, Xavier; Marinello, Diana; Martin, Thierry; Matthews, Lisa; Matucci-Cerinic, Marco; Meyer, Alain; Milas-Ahic, Jasminka; Moinzadeh, Pia; Montecucco, Carlomaurizio; Mouthon, Luc; Müller-Ladner, Ulf; Nagy, György; Patarata, Eunice.
Afiliación
  • Talarico R; Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, Pisa, Italy.
  • Aguilera S; Spanish Association for Antiphospholipid Syndrome (SAF España), Elche, Spain.
  • Alexander T; Department of Rheumatology and Clinical Immunology, Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, and Berlin Institute of Health, Berlin, Germany.
  • Amoura Z; Department of Internal Medicine, Hospital Pitié-Salpêtrière, Assistance Publique Hôpitaux de Paris, French National Referral Center for SLE and APS, Paris, France.
  • Andersen J; Lupus Europe, Brussels, Belgium.
  • Arnaud L; Service de rhumatologie, Hôpitaux Universitaires de Strasbourg, Centre National de Référence des Maladies Systémiques et Auto-immunes Rares Grand-Est Sud-Ouest (RESO), Strasbourg, France.
  • Avcin T; Department of Allergology, Rheumatology and Clinical Immunology, University Children's Hospital, University Medical Centre Ljubljana, Ljubljana, Slovenia.
  • Marsal Barril S; Reumatología, Hospital Universitari de Vall Hebron, Barcelona, Spain.
  • Beretta L; Referral Center for Systemic Autoimmune Diseases, Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico di Milano, Italy.
  • Bombardieri S; University of Pisa, Italy.
  • Bortoluzzi A; Department of Medical Sciences, Rheumatology Section, University of Ferrara, Azienda Ospedaliero-Universitaria Sant'Anna di Cona, Ferrara, Italy.
  • Bouillot C; Sjögren Europe, Bienne, Switzerland.
  • Bulina I; Department of Internal Diseases, Rheumatology Centre, Paul Stradins Clinical University Hospital, Riga, Latvia.
  • Burmester GR; Department of Rheumatology and Clinical Immunology, Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, and Berlin Institute of Health, Berlin, Germany.
  • Cannizzo S; Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, Pisa, Italy.
  • Cavagna L; Department of Rheumatology, IRCCS Policlinico San Matteo Foundation, Pavia, Italy.
  • Chaigne B; Service de Médecine Interne, Hôpital Cochin, Centre de Référence Maladies Systémiques Autoimmunes Rares d'Ile de France, Assistance Publique-Hôpitaux de Paris (AP-HP), Université de Paris, France.
  • Cornet A; Lupus Europe, Brussels, Belgium.
  • Corti P; Relapsing Polychondritis Awareness and Support, Worcester, UK.
  • Costedoat-Chalumeau N; Service de Médecine Interne, Hôpital Cochin, Centre de Référence Maladies Systémiques Autoimmunes Rares d'Ile de France, Assistance Publique-Hôpitaux de Paris (AP-HP), Université de Paris, France.
  • Davidsone Z; Departement of Paediatrics, Riga Stradins University (RSU), Riga, Latvia.
  • Doria A; Rheumatology Unit, Department of Medicine, University of Padova, Italy.
  • Fenech C; Mater Dei Hospital, Msida, Malta.
  • Ferraris A; Medical Genetics Laboratory, Molecular Medicine Department, San Camillo Forlanini Hospital, Sapienza University, Rome, Italy.
  • Fischer-Betz R; Department of Rheumatology, University Hospital Düsseldorf, Heinrich-Heine-University Düsseldorf, Germany.
  • Fonseca JE; Rheumatology Department, Hospital de Santa Maria, Centro Hospitalar Universitário Lisboa Norte, Lisbon Academic Medical Centre and Rheumatology Research Unit, Instituto de Medicina Molecular, Faculdade de Medicina, Universidade de Lisboa, Portugal.
  • Frank C; Flemish Association for Hereditary Connective Tissue Disorders, Koersel, Belgium.
  • Gaglioti A; Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, Pisa, Italy.
  • Galetti I; Federation of European Scleroderma Associations (FESCA), Milan, Italy.
  • Guimarães V; Liga Portuguesa Contra as Doenças Reumáticas, Lisbon, Portugal.
  • Hachulla E; Département de Médecine Interne et Immunologie Clinique, Centre de Référence des Maladies Systémiques et Auto-Immunes Rares du Nord-Ouest (CERAINO), LIRIC, INSERM, Université de Lille, CHU Lille, France.
  • Holmner M; Federation of European Scleroderma Associations (FESCA), Milan, Italy.
  • Houssiau F; Department of Rheumatology, Cliniques Universitaires Saint-Luc, Brussels, Belgium.
  • Iaccarino L; Rheumatology Unit, Department of Medicine, University of Padova, Italy.
  • Jacobsen S; Copenhagen Lupus and Vasculitis Clinic, Rigshospitalet, Copenhagen, Denmark.
  • Limper M; Department of Rheumatology and Clinical Immunology, University Medical Center Utrecht, Utrecht University, The Netherlands.
  • Malfait F; Center for Medical Genetics, Ghent University Hospital and Department for Biomolecular Medicine, Ghent University, Ghent, Belgium.
  • Mariette X; Université Paris-Saclay, INSERM, CEA, Centre de recherche en Immunologie des infections virales et des maladies auto-immunes; AP-HP, Hôpital Bicêtre, Rheumatology Department, Le Kremlin Bicêtre, France.
  • Marinello D; Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, Pisa, Italy.
  • Martin T; Service d'Immunologie Clinique, Hôpitaux Universitaires de Strasbourg, Centre National de Référence des Maladies Systémiques et Autoimmunes Rares Grand-Est Sud-Ouest (RESO), Strasbourg, France.
  • Matthews L; Relapsing Polychondritis Awareness and Support, Worcester, UK.
  • Matucci-Cerinic M; Department of Experimental and Clinical Medicine, University of Florence, and Division of Rheumatology AOUC, Florence, and Unit of Immunology, Rheumatology, Allergy and Rare Diseases (UnIRAR), IRCCS San Raffaele Hospital, Milan, Italy.
  • Meyer A; Service de rhumatologie, Hôpitaux Universitaires de Strasbourg, Centre National de Référence des Maladies Systémiques et Auto-immunes Rares Grand-Est Sud-Ouest (RESO), Strasbourg, France.
  • Milas-Ahic J; Department of Rheumatology, Clinical Immunology and Allergology, University Hospital Osijek, Croatia.
  • Moinzadeh P; Department of Dermatology, Universitätsklinikum, Cologne, Germany.
  • Montecucco C; Department of Rheumatology, IRCCS Policlinico San Matteo Foundation, Pavia, Italy.
  • Mouthon L; Service de Médecine Interne, Hôpital Cochin, Centre de Référence Maladies Systémiques Autoimmunes Rares d'Ile de France, Assistance Publique-Hôpitaux de Paris (AP-HP), Université de Paris, France.
  • Müller-Ladner U; Department of Rheumatology and Clinical Immunology, Kerckhoff Klinik, Justus Liebig University of Giessen, Bad Nauheim, Germany.
  • Nagy G; Department of Rheumatology and Clinical Immunology, Department of Internal Medicine and Oncology, Semmelweis University, Budapest, Department of Genetics, Cell and Immunobiology, Semmelweis University, Budapest, and Heart and Vascular Centre, Semmelweis University, Budapest, Hungary.
  • Patarata E; Auto-immune Disease Unit, Hospital de Curry Cabral, Centro Hospitalar de Lisboa Central, EPE, Lisbon, Portugal.
Clin Exp Rheumatol ; 40 Suppl 134(5): 3-11, 2022 May.
Article en En | MEDLINE | ID: mdl-35349419
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Enfermedades Musculoesqueléticas / Enfermedades Raras Tipo de estudio: Diagnostic_studies / Guideline / Risk_factors_studies Límite: Humans País/Región como asunto: Europa Idioma: En Revista: Clin Exp Rheumatol Año: 2022 Tipo del documento: Article País de afiliación: Italia Pais de publicación: Italia
Texto completo
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XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Enfermedades Musculoesqueléticas / Enfermedades Raras Tipo de estudio: Diagnostic_studies / Guideline / Risk_factors_studies Límite: Humans País/Región como asunto: Europa Idioma: En Revista: Clin Exp Rheumatol Año: 2022 Tipo del documento: Article País de afiliación: Italia Pais de publicación: Italia