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Patient reported impact of symptoms in amyotrophic lateral sclerosis (PRISM-ALS): A national, cross-sectional study.
Zizzi, Christine; Seabury, Jamison; Rosero, Spencer; Alexandrou, Danae; Wagner, Ellen; Weinstein, Jennifer S; Varma, Anika; Dilek, Nuran; Heatwole, John; Wuu, Joanne; Caress, James; Bedlack, Richard; Granit, Volkan; Statland, Jeffrey M; Mehta, Paul; Benatar, Michael; Heatwole, Chad.
Afiliación
  • Zizzi C; Center for Health + Technology, 265 Crittenden Blvd, CU 420694, Rochester, NY, 14642, USA.
  • Seabury J; University of Rochester, Department of Neurology, 601 Elmwood Ave, Box 673, Rochester, NY, 14642, USA.
  • Rosero S; Center for Health + Technology, 265 Crittenden Blvd, CU 420694, Rochester, NY, 14642, USA.
  • Alexandrou D; Center for Health + Technology, 265 Crittenden Blvd, CU 420694, Rochester, NY, 14642, USA.
  • Wagner E; Center for Health + Technology, 265 Crittenden Blvd, CU 420694, Rochester, NY, 14642, USA.
  • Weinstein JS; Center for Health + Technology, 265 Crittenden Blvd, CU 420694, Rochester, NY, 14642, USA.
  • Varma A; Center for Health + Technology, 265 Crittenden Blvd, CU 420694, Rochester, NY, 14642, USA.
  • Dilek N; Center for Health + Technology, 265 Crittenden Blvd, CU 420694, Rochester, NY, 14642, USA.
  • Heatwole J; University of Rochester, Department of Neurology, 601 Elmwood Ave, Box 673, Rochester, NY, 14642, USA.
  • Wuu J; Sutherland High School, Pittsford, NY, USA.
  • Caress J; University of Miami Miller School of Medicine, Department of Neurology, 1120 NW 14th Street, Suite 1300, Miami, FL, 33136, USA.
  • Bedlack R; Wake Forest Baptist Health, Medical Center Blvd, Winston-Salem, NC, 27157, USA.
  • Granit V; Duke University School of Medicine, Department of Neurology, 311 Research Dr, Durham, NC, 27710, USA.
  • Statland JM; University of Miami Miller School of Medicine, Department of Neurology, 1120 NW 14th Street, Suite 1300, Miami, FL, 33136, USA.
  • Mehta P; University of Kansas Medical Center, Department of Neurology, 3901 Rainbow Blvd, Kansas City, KS, 66160, USA.
  • Benatar M; Centers for Disease Control and Prevention/Agency for Toxic Substances and Disease Registry, National ALS Registry, 4770 Buford Highway NE, Atlanta, GA, 30341, USA.
  • Heatwole C; University of Miami Miller School of Medicine, Department of Neurology, 1120 NW 14th Street, Suite 1300, Miami, FL, 33136, USA.
EClinicalMedicine ; 55: 101768, 2023 Jan.
Article en En | MEDLINE | ID: mdl-36531982

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Diagnostic_studies / Observational_studies / Prevalence_studies / Prognostic_studies / Qualitative_research / Risk_factors_studies Aspecto: Patient_preference Idioma: En Revista: EClinicalMedicine Año: 2023 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Reino Unido

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Diagnostic_studies / Observational_studies / Prevalence_studies / Prognostic_studies / Qualitative_research / Risk_factors_studies Aspecto: Patient_preference Idioma: En Revista: EClinicalMedicine Año: 2023 Tipo del documento: Article País de afiliación: Estados Unidos Pais de publicación: Reino Unido