Identification of relevant international Classification of Functioning Disability and Health (ICF) categories in patients with 22q11. 2 Deletion Syndrome: a Delphi exercise
CoDAS
; 32(6): e20190158, 2020. tab, graf
Artigo
em Inglês
| LILACS
| ID: biblio-1133550
Biblioteca responsável:
BR1.1
ABSTRACT
ABSTRACT Purpose:
The aim of this study was to identify the most typical and relevant categories of the International Classification of Functioning, Disability and Health (ICF) for patients with 22q11.2 Deletion Syndrome.Methods:
Based on the Delphi technique an expert survey through e-mail was performed among health professionals' specialists in the 22q11.2DS. Data were collected in 2 rounds. Answers were analysed for the degree of consensus.Results:
7 Experts recruited through e-mail distribution lists of professional organizations and personal networks participated in the study. Categories in all ICF components that were considered typical and/or relevant by at least 80% of the responders were added to a pilot ICF instrument for children with 22q11.2DS, with a total of 145 ICF categories.Conclusion:
a list of ICF categories that are considered relevant and typical for 22q11.2DS condition by international experts was created. This is an important step towards identifying ICF Core Sets for chronic paediatric conditions in Brazil.
Texto completo:
Disponível
Coleções:
Bases de dados internacionais
Base de dados:
LILACS
Assunto principal:
Pessoas com Deficiência
/
Síndrome de DiGeorge
Tipo de estudo:
Estudo diagnóstico
Aspecto:
Preferência do paciente
Limite:
Criança
/
Humanos
País/Região como assunto:
América do Sul
/
Brasil
Idioma:
Inglês
Revista:
CoDAS
Assunto da revista:
Audiologia
/
Patologia da Fala e Linguagem
Ano de publicação:
2020
Tipo de documento:
Artigo
País de afiliação:
Brasil
Instituição/País de afiliação:
Fundação Oswaldo Cruz/BR
/
Instituto Federal do Rio de Janeiro/BR