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Advancing the management of primary immunodeficiency diseases in Latin America: Latin American Society for Immunodeficiencies (LASID) Initiatives
Condino-Neto, A; Franco, J. L; Espinosa-Rosales, F. J; Leiva, L. E; King, A; Porras, O; Oleastro, M; Bezrodnik, L; Grumach, A. S; Costa-Carvalho, B. T; Sorensen, R. U.
Afiliação
  • Condino-Neto, A; University of São Paulo. Institute of Biomedical Sciences. Department of Immunology. São Paulo. Brazil
  • Franco, J. L; University of Antioquia. School of Medicine. Group of Primary Immunodeficiencies. Medellín. Colombia
  • Espinosa-Rosales, F. J; Instituto Nacional de Pediatría. Unidad de Investigación en Inmunodeficiencias. México City. Mexico
  • Leiva, L. E; Lousiana State University Health Sciences Center. Department of Pediatrics. New Orleans. USA
  • King, A; Luis Calvo Mackenna Hospital. Immunology Unit. Santiago de Chile. Chile
  • Porras, O; Hospital Nacional de Niños Dr. Carlos Sáenz Herrera. San José. Costa Rica
  • Oleastro, M; Hospital Nacional de Pediatría "Prof Dr Juan P. Garrahan". Buenos Aires. Argentina
  • Bezrodnik, L; Hospital de Niños Ricardo Gutiérrez. Buenos Aires. Argentina
  • Grumach, A. S; Faculty of Medicine ABC and Center of Disease Control/Immunization. Department of Pulmonology. São Paulo. Brazil
  • Costa-Carvalho, B. T; Federal University of São Paulo. Department of Pediatrics. São Paulo. Brazil
  • Sorensen, R. U; University of La Frontera. Faculty of Medicine. Temuco. Chile
Allergol. immunopatol ; 40(3): 187-193, mayo-jun. 2012. tab
Artigo em Inglês | IBECS | ID: ibc-99348
Biblioteca responsável: ES1.1
Localização: BNCS
ABSTRACT
Primary immunodeficiency diseases (PIDD) are associated with significant morbidity and mortality and result in a significant public health burden. This is in part due to the lack of appropriate diagnosis and treatment of these patients. It is critical that governments become aware of this problem and provide necessary resources to reduce this impact on health care systems. Leading physicians in their respective countries must be supported by their own governments in order to implement tools and provide education and thus improve the diagnosis and treatment of PIDD. The Latin American Society of Primary Immunodeficiencies (LASID) has initiated a large number of activities aimed at achieving these goals, including the establishment of a PIDD registry, development of educational programmes and guidelines, and the introduction of a PIDD fellowship programme. These initiatives are positively impacting the identification and appropriate treatment of patients with PIDD in Latin America. Nevertheless, much remains to be done to ensure that every person with PIDD receives proper therapy(AU)
Assuntos
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Coleções: Bases de dados nacionais / Espanha Base de dados: IBECS Assunto principal: Síndromes de Imunodeficiência Tipo de estudo: Estudo de etiologia / Guia de prática clínica / Estudo prognóstico / Fatores de risco Limite: Humanos Idioma: Inglês Revista: Allergol. immunopatol Ano de publicação: 2012 Tipo de documento: Artigo Instituição/País de afiliação: Immunization+Brazil / Federal University of São Paulo/Brazil / Hospital Nacional de Niños Dr. Carlos Sáenz Herrera/Costa Rica / Hospital Nacional de Pediatría "Prof Dr Juan P. Garrahan"/Argentina / Hospital de Niños Ricardo Gutiérrez/Argentina / Instituto Nacional de Pediatría/Mexico / Lousiana State University Health Sciences Center/USA / Luis Calvo Mackenna Hospital/Chile / University of Antioquia/Colombia / University of La Frontera/Chile
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Coleções: Bases de dados nacionais / Espanha Base de dados: IBECS Assunto principal: Síndromes de Imunodeficiência Tipo de estudo: Estudo de etiologia / Guia de prática clínica / Estudo prognóstico / Fatores de risco Limite: Humanos Idioma: Inglês Revista: Allergol. immunopatol Ano de publicação: 2012 Tipo de documento: Artigo Instituição/País de afiliação: Immunization+Brazil / Federal University of São Paulo/Brazil / Hospital Nacional de Niños Dr. Carlos Sáenz Herrera/Costa Rica / Hospital Nacional de Pediatría "Prof Dr Juan P. Garrahan"/Argentina / Hospital de Niños Ricardo Gutiérrez/Argentina / Instituto Nacional de Pediatría/Mexico / Lousiana State University Health Sciences Center/USA / Luis Calvo Mackenna Hospital/Chile / University of Antioquia/Colombia / University of La Frontera/Chile
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