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Analyzing innovative policies and practices for palliative care in Portugal: a qualitative study.
da Silva, Marcelle Miranda; Telles, Audrei Castro; Baixinho, Cristina Lavareda; Sá, Eunice; Costa, Andreia; Henriques, Maria Adriana Pereira.
Afiliação
  • da Silva MM; Escola de Enfermagem Anna Nery (EEAN), Universidade Federal do Rio de Janeiro (UFRJ), Afonso Cavalcanti Street, Rio de Janeiro, 21211-110, RJ, Brazil. marcellemsufrj@gmail.com.
  • Telles AC; Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Prof Egas Moniz Avenue, Lisbon, 1600-190, Portugal. marcellemsufrj@gmail.com.
  • Baixinho CL; Escola de Enfermagem Anna Nery (EEAN), Universidade Federal do Rio de Janeiro (UFRJ), Afonso Cavalcanti Street, Rio de Janeiro, 21211-110, RJ, Brazil.
  • Sá E; Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Prof Egas Moniz Avenue, Lisbon, 1600-190, Portugal.
  • Costa A; Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Prof Egas Moniz Avenue, Lisbon, 1600-190, Portugal.
  • Henriques MAP; Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Prof Egas Moniz Avenue, Lisbon, 1600-190, Portugal.
BMC Palliat Care ; 23(1): 225, 2024 Sep 11.
Article em En | MEDLINE | ID: mdl-39256708
ABSTRACT

BACKGROUND:

Countries with formal policies for palliative care, and advanced and integrated practices in this field, such as Portugal, face challenges in achieving excellence in care, particularly in home-based assistance. Issues include care coordination among providers, confusion regarding the roles of each health care professional in the network, and a lack of monitoring and evaluation of actions. Our objective was to analyze the implementation of palliative care in primary health care in Portugal.

METHODS:

We conducted a qualitative, descriptive, and exploratory study in Portugal involving health care professionals with experience in palliative care. The data were collected through semistructured interviews and focus groups between March and October 2023. Eighteen health care professionals participated. We used the Alceste software for lexicographic analysis. The research was authorized by an Ethics Committee.

RESULTS:

Four classes were identified; classes 1 and 2, comprising 77% of the corpus, addressed the study objectives. Participants highlighted inequitable access, strategic development plans with unattainable short-term goals; and low literacy. They emphasized the importance of legislation, professional training initiatives for generalist palliative care at home, and early referral. Home-based challenges included professionals' lack of exclusive dedication, absence of 24/7 coverage, and unavailability of capable family caregivers. The networks' response to hospital admissions and patient transitions from hospital to home, with access to the specialized team, was also inadequate.

CONCLUSIONS:

Health care professionals aim to increase patients' time spent at home, reduce emergency department visits, and minimize hospitalizations by leveraging the resources of the national palliative care network. In addition to investments to sustain network implementation and legally guaranteed palliative care rights, the country must focus on measurable indicators for evaluating and monitoring actions, providing better guidance in the short, medium, and long term.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Cuidados Paliativos / Grupos Focais / Pesquisa Qualitativa Limite: Adult / Female / Humans / Male / Middle aged País/Região como assunto: Europa Idioma: En Revista: BMC Palliat Care Ano de publicação: 2024 Tipo de documento: Article País de afiliação: Brasil País de publicação: Reino Unido

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Cuidados Paliativos / Grupos Focais / Pesquisa Qualitativa Limite: Adult / Female / Humans / Male / Middle aged País/Região como assunto: Europa Idioma: En Revista: BMC Palliat Care Ano de publicação: 2024 Tipo de documento: Article País de afiliação: Brasil País de publicação: Reino Unido