Carga familiar objetiva y subjetiva de pacientes con trastornos mentales severos a partir del family burden interview schedule

Resumen:“The Family Burden Interview Schedule – Short Form" (FBIS-SF) de Tesseler yGamache, es una entrevista que permite valorar la carga objetiva y subjetiva, querepresenta para las familias, el cuidado de pacientes con trastornos mentales severos.El Objetivo propuesto fue analizar la carga familiar objetiva y subjetiva.Material y Método: La Entrevista es de formato Modular (11 Módulos) conpuntuaciones independientes. Las áreas abordadas son carga objetiva y subjetiva enayuda familiar en actividades de la vida cotidiana, contención de comportamientosalterados, motivo de preocupación por el paciente, gastos económicos, cambios en larutina diaria del cuidador, motivos de preocupación por el paciente, ayuda quedispone el informante, repercusiones en la salud del cuidador, beneficios ygratificaciones, estigma y repercusión global del informante y del entrevistador. Cadamódulo se valora mediante respuestas. Dicotómicas y Escalas de tipo Likert,compuesto por diferentes números de ítems.La muestra poblacional fue seleccionada en 93 cuidadores mayores de 18 añosque lleven conviviendo más de 30 días con familiares donde se recopiló la informaciónde datos, tales como: edad, sexo y vinculación familiar.En la presente investigación se efectuó un análisis de la fiabilidad y deconsistencia interna, así como una adaptación semántica. Con los registros obtenidosdel instrumento se generó una base de datos a fin de estructurar organizativamentelas variables involucradas en el estudio...

Abstract:“The Family Burden Interview Schedule - Short Form” (FBIS-SF) of Tesselerand Gamache, it is a subjective interview that allows to value the objective load andthat represents for the families the care of patients with severe mental upheavals. Theobjective in this one investigation, it was to analyze the objective and subjectivefamiliar load.Matherials and methods: The interview is Modular format (11 you modulate)with independent ratings. The areas addressed are objective and subjective burden onfamily assistance in activities of daily living, containment of altered behavior, concernfor the patient, economic costs, changes in daily routine caregiver concerns by thepatient, help has the informant, impact on the caregiver's health, benefits and perks,stigma and overall impact of the informant and the interviewer. Each modulates isassessed by Dichotomous responses and Likert scales composed of differentnumbers of items. The population sample was selected in 93 caregivers aged 18 withcoexisting to over 30 days with relatives where information was collected dates, suchace age, sex and family ties. In the present investigation an internal analysis of thereliability and consistency ace well cultural ace to adaptation was made. With recordobtained from the instrument generated to variable database to organizationallystructure the involved in the study...

A família no acompanhamento de sujeitos psicóticos: os encargos subjetivos oriundos do sofrimento psíquico / The family follow up of a psychotic person: subjective burdens from distress

O presente artigo teve como objetivo conhecer a história do tratamento em saúde mental a partir do relato de um usuário dos serviços e de um familiar responsável pelo cuidado, investigando as repercussões subjetivas de ser o familiar responsável pelos cuidados de um psicótico. Trata-se de um estudo qualitativo e exploratório. Para coleta de dados, optou-se pela entrevista semiestruturada, realizada com o usuário de um Centro de Atenção Psicossocial e com sua cuidadora. Os dados coletados foram organizados e analisados por meio da técnica de análise de conteúdo. Os resultados mostraram que a posição da mãe é de cuidadora exclusiva, o que repercute em encargos subjetivos que atingem níveis emocionais, físicos e inter-relacionais, dadas as dificuldades de se conviver com o sofrimento psíquico. Sugere-se que os serviços de saúde mental desenvolvam programas de orientação aos familiares cuidadores, bem como apoio no enfrentamento das situações de crise.(AU)

This paper aimed to know the history of mental health treatment from report of an user of the services and his family care, and also investigating the subjective effects on the psychotic's family caregiver. The study is based on qualitative and exploratory research. The information was verified though a semi-structured interview held with an user of a Psychosocial Care Center and his caregiver. The information collected were organized and analyzed by the technique of content analysis. The results showed that position of mother is exclusive caregiver, being so the impact on caregiver is subjective burdens affecting emotional, physical and inter-relational levels, due to the reason of difficulties on living with mental suffers. The suggestion would be a development of orientation programs through mental health services governmental to family caregivers as well to support crisis situations.(AU)

Family Caregiver Burden of Stroke Patient

BACKGROUND: After the group education program for the families of stroke patients, we found there were improvement in family members' mental health state and coping skills. However, we also found that family caregiver's burden varied depending on patient and family factors. The purpose of this study, therefore, were to explore which factors affected caregiver's burden on family members of stroke patients and to make a background for suggesting an effective intervention strategies for them. METHOD: The subjects of this study were 187 family members of stroke patients who received the treatment from Hospital located in Seoul and Kyunggi area and they completed the written questionnaire. RESULTS: While Family member's health state, share of care responsibility, patient's functional status and family and friends support were predictors of subjective care burden, patients age and left hemiparesis among patient's functional status were predictors of objective care burden. CONCLUSIONS: Family members play a critical role in the long-term rehabilitation of a stroke patient. Hence reducing family members' care burden is very important for a patient as well as their family members. Therefore if we make intervention strategies considering these influential factors, it could be more effective to reduce family caregiver's burden.