Effect of acupoint thread-embedding therapy on the sitting ability of ataxia children with cerebral palsy / 针刺研究

OBJECTIVE: To investigate the effective of acupoint thread-embedding therapy for ataxia children with cerebral palsy. METHODS: A total of 70 ataxia children with cerebral palsy and a Gross Motor Function Measure (GMFM, Dimension B) score of <35 were enrolled and randomly divided into thread-embedding group and control group, with 35 children in each group, and 2 children in the thread-embedding group were lost to follow-up. The children in the control group were given routine rehabilitation treatment, including physical therapy, spleen-strengthening, kidney-nourishing, and Governor Vessel-regulating massage, vibroacoustic therapy, and scalp acupuncture, and those in the thread-embedding group were given thread-embedding therapy at the acupoints of Jianyu (LI15), Jianliao (SJ14), Tianzong (SI11), Tianshu (ST25), and HuatuoJiaji points (C4, L1 and L4) in addition to the treatment in the control group, with 6-8 acupoints selected each time, once a week. Each course of treatment was 4 weeks, with an interval of one week between two courses of treatment, and the children were treated for 3 courses. Level of sitting scale (LSS), incurvation reflex, and GMFM score were recorded to evaluate the improvement in sitting ability and clinical outcome. RESULTS: Both groups had significant improvements in LSS, incurvation reflex, and GMFM (Dimension A and B) score after treatment (P<0.01), and the thread-embedding group had significantly greater improvements than the control group (P<0.01). The thread-embedding group had a significantly higher overall response rate than the control group (90.9% [30/33] vs 68.5% [24/35], P<0.01). CONCLUSION: In addition to routine rehabilitation treatment, acupoint thread-embedding therapy can effectively suppress primitive reflex in ataxia children with cerebral palsy and significantly promote their sitting ability, and therefore, it is an effective acupuncture treatment method for ataxia children with cerebral palsy.

The Economic Burden Of Families Of Children With Cerebral Palsy In Malaysia

@#The economic burden of children with cerebral palsy exceeds far beyond the needs of typical children leading to physical and mental stress to their parents. The study aims to examine the economic burden of parents of children with cerebral palsy in Malaysia. Calculation is made using a cost of illness approach due to cerebral palsy disorders that includes direct healthcare costs, direct non-healthcare costs, developmental costs and indirect costs. Using convenient sampling method, a total of 74 parents completed questionnaires through online or hard copies. Direct healthcare costs represent the highest cost of RM14, 715.49, followed by the developmental costs of RM10, 146.07, RM2, 674.00 for direct non-healthcare costs and RM2,175.20 for indirect costs. So the total cost of financing for the needs of a child with cerebral palsy is RM29, 710.76 per year. This is a huge and burdensome amount for their parents. The findings of this study may assist policy makers in their planning of effective service provision to suit the needs of parents of children with cerebral palsy in Malaysia.

Effectiveness of team-based continuous nursing on improving the life function of children with cerebral palsy / 中国实用护理杂志

Objective To observe the effect of team-based continuous nursing on improving the life function of children with cerebral palsy. Methods From March 2014 to March 2016, 35 children aged 18-36 months with cerebral palsy were selected as the experimental group;35 matched patients with the same age, same gender, same Gross Motor Function Classification System (GMFCS) and functionally similar were selected as the control group by matching design. Among them, 32 cases were followed up in the experimental group while 30 cases in the control group. In the control group, routine discharge education was adopted, but the experimental group was treated by team-based continuous nursing. The ability of daily living was evaluated by the Pediatric Evaluation of Disability Inventory (PEDI). Neuropsychological development was evaluated by the Gesell Development Scale and Body balance was evaluated by the Berg Balance Function Scale after discharge and also after 6 months follow-up. Results After the intervention for 6 months, the functional skill and assisting assistance of PEDI was (77.56 ± 23.58), (38.78 ± 13.96) points in the experimental group, and (65.12 ± 24.23), (30.35 ± 12.78) points in the control groups, there were significant differences between two groups(t=2.0485, 2.4750, P0.05) , but the experimental group was higher than the control group. The scores of Berg Balance Function Scale was(33.20 ± 4.12) points in the experimental group, and (29.67 ± 4.98) points in the control group, there were significant differences between two groups (t = 3.0488, P<0.05). Conclusions To improve the life function of children with cerebral palsy, the implementation of the team-based continuous nursing had a significant effect.

Postural Control Influence on Upper Extremity Function among Children with Cerebral Palsy: A Literature Review / Jurnal Sains Kesihatan Malaysia

Performance of upper extremity function and movement sequence is influenced by postural control. Motor disorders lead to deficits in postural control, which subsequently may lead to postural instability of children with cerebral palsy (CWCP). This will limit their upper extremity activity performance. Management strategies help to support and enhance the CWCP’s upper extremity function so that they may engage with the activities of daily living. The purpose of this paper is to review previous literature on the influence of postural control towards upper extremity function. Literature searches were conducted in various electronic databases, including ProQuest, Science Direct, Springer Link, Sage, Wiley Online Library, and Google Scholar using specific key terms. Search terms included children with cerebral palsy; postural control; postural adjustments; upper extremity function; reaching and sitting and from references of retrieved articles. Nineteen journal articles published between 2000 and May 2015 were found. Most search results consisted of experimental studies, while others are reviews, case studies, and cross-sectional studies. Findings show that, postural control has a major influence on upper extremity function. In conclusion, it is necessary to highlight the importance of both factors to the CWCP parents or caregivers, as understanding and awareness on this matter is still inadequate in the community. Hence, a study is needed on the awareness of the postural control influence on upper extremity function among caregivers, as well as examining the implementation of management strategies in community settings.

Qualitative study of in depth interview on 24 hours treatment and management model of children with cerebral palsy in Shanghai / 中国实用护理杂志

Objective To investigate the feasibility of implementing the 24 hours treatment and management model of children with cerebral palsy in Shanghai,in order to provide a set of effective and saving manpower,material and financial rehabilitation and management model for children with cerebral palsy.Methods Firstly,the 10 exports engaged in cerebral palsy rehabilitation were selected as the in depth interviewees by the sampling method of grounded theory.Secondly,applying in depth interviews,the 10 exports were interviewed by designing interview outline and subjects.Last,the interview data were collected and analyzed.Results By analyzing the interview data in three-stage coding mode,three factors affecting the feasibility of 24 hours treatment and management model of children with cerebral palsy in Shanghai were obtained,including the favorable factors,obstacles and necessary factors.Conclusions The 24-hour treatment and management model of children with cerebral palsy in Shanghai is feasible,but it will encounter some obstacles in the implementation process.Through the policy support for health care and education sectors,the feasibility of the pattern will be greatly enhanced.

A comparative study of the speech respiratory characteristics of 7-15 years old ordinary children and children with spastic cerebral palsy / 中华物理医学与康复杂志

Objective To explore the speech respiratory characteristics of 7-15 years old children with spastic cerebral palsy and the differences between ordinary children and children with cerebral palsy.Methods The maximum phonation time (MPT) and maximum counting ability (MCA) of 90 ordinary children and 58 children with cerebral palsy aged 7-15 years were measured and a comparison between the 2 groups were conducted.Results (1) Age has significant effects on MPT and MCA of the ordinary children (P ＜0.05).The MPT and MCA of the ordinary children at the age of 7 ～9 years and 10 ～ 12 years are lower than the ones at the age of 13 ～ 15 years.Age has almost no effects on MPT and MCA of children with cerebral palsy(P ＞0.05) ; (2)Sex has no significant effects on MPT and MCA of ordinary children and children with cerebral palsy (P ＞0.05) ; (3) The MPT and MCA of children with cerebral palsy are significantly lower than those of ordinary children (P ＜0.05).Conclusions The MPT and MCA of ordinary children are increased with the growth of age,especially after the age of 13 years,but the children with spastic cerebral palsy do not show that kind of trend and demonstrate a state of retardation of speech respiratory function.Compared with ordinary children,the children with spastic cerebral palsy are easier to suffer from insufficient respiratory support and poor respiratory-phonatory coordination.

Survey Reveals the Significance of Mothers Accompanying Their Children in the Rehabilitation Facility / The Japanese Journal of Rehabilitation Medicine

At the time that they left the rehabilitation facility, we conducted a survey of mothers who had accompanied their children during their stay in the rehabilitation facility. We conducted a five-tiered evaluation of the extent of their satisfaction and of their answers to various questions and studied the significance of mothers accompanying their children during their stay in the rehabilitation facility. There were 334 respondents, and the response rate was 74%. According to the results, 91% were satisfied or somewhat satisfied ; 94% thought, or thought to a certain extent, "I was able to concentrate on engaging with my child more than at home"; 94% thought, or thought to a certain extent, "I gained a good understanding of how to handle childrearing and training at home"; 87% thought, or thought to a certain extent, "There was a positive change in my child, and I saw improvement in the way my child functioned"; and 87% thought, or thought to a certain extent, "It was good to be able to exchange information with other mothers and the staff." The importance of the role played in rehabilitation when mothers and children attended the rehabilitation facility together thus became clear. When a child's motor functions improve through intensive training, and when the mother's motivation regarding rehabilitation increases and her ability to handle the child improves, it is highly significant in many ways : improvement can be seen not only in motor development but also in psychological development. The child becomes easier to handle, the things that can be done in daily life, at home, increase ; and after leaving the facility, it is possible to link the advances made in the rehabilitation facility to setting and attaining new goals.

Crianças que cuidam de irmãos com necessidades especiais / Children caretaking for siblings with special needs

Este estudo analisou situações em que um irmão/ã ajuda a cuidar de uma criança com necessidades especiais. Foram entrevistadas as mães e as crianças cuidadoras de 10 famílias de baixa renda, em Salvador-Bahia, com filhos portadores de paralisia cerebral. São detalhados os comportamentos de cuidado indicados pelas mães e pelas crianças cuidadoras, a participação das crianças em tarefas domésticas e suas atividades de lazer. Descrevem-se dificuldades e satisfação/insatisfação dos cuidadores com a tarefa, e expectativas de mães e crianças em relação ao futuro. Discute-se o grau de responsabilidade atribuído às crianças. Apontam-se limitações do estudo e algumas direções de intervenção para profissionais de saúde que atendem essas famílias.

This study analyzed situations in which a child shares part of the caretaking tasks required by a brother or sister with special needs. Mothers and child caretakers of 10 low-income families, in Salvador-Bahia, with a cerebral palsy child, were interviewed. Caretaking behaviors indicated by mothers and child caretakers, children's participation in domestic tasks, and their leisure activities are detailed. The caretakers' satisfaction/dissatisfaction and difficulties with their role, and their mother's and their own expectations for the future are described. The degree of responsibility attributed to the children is discussed. Limitations of the study and some possible directions of intervention for health professionals attending families in similar situations are pointed out.

Observation and nursing for children with cerebral palsy by cerebrovascular function treatment / 中国实用护理杂志

Objective To investigate the curative effect and nursing of children with cerebral palsy treated by cerebrovascular function treatment(CVFT).Methods Children with cerebral palsy(56 cases)were divided into the therapy group and the control group.They all received rehabilitation training and medication.The therapy group were treated with CVFT based upon routine treatmenL Results The effective rate in the thempy group was 96.5% and was 77.8% in the control group.There were statistical difference between the two groups(P＜0.05).Conclusions CVFY can improve the cerebral circulation,advance the blood-supply and oxygen-supply of injured cerebral tissue,alleviate the putrescence of cerebral tissue,accelerate the functional recovery of limbs of children with cerebral palsy,shorten the course of disease and improve the quality of children's life.

Effect of Rehabilitation on Pneumonia in Children with Cerebral Palsy / 中国康复理论与实践

@# Objective To explore the effect of rehabilitation on pneumonia in children with cerebral palsy (CP).Methods60 CP children with pneumonia were randomly divided into the control group and rehabilitation group with 30 cases in each group. All children in two groups received active support therapy but those in the rehabilitation group were added with rehabilitation treatment.ResultsThe time of body temperature decline, alleviation of cough and expectoration, role disappear of the rehabilitation group were shortened compared with that of the control group ( P<0.05).ConclusionRehabilitation treatment is helpful for treatment of pneumonia in CP children.

The study on the psychology history of the parents of children with cerebral palsy / 重庆医科大学学报

Objective:To learn the pavements' experiences during the process of diagnosis,treatment,recongnication and provide guidance for the medical stuff with psychology support to help the family of children with cerebral palsy.Methods:100 couples parents were interviewed,the data collected were analysed,listed systematically,then proposed subject.Results:The parents whose children with cerebral pasly suffer large psychology conflict and economic pressure,when they go through the first state full of shocking,suffering and denying,they have to accept the truth unwillingly.And they felt pessimistical exceedingly for the future.The support system helping them pass through the psychology crisis relied on the inwardness of parents,their families and the others facing the same situations.Conclusion:The parents of children with cerebral palsy need deeply humanistic care and emotional support.And it is beneficial to implement psychological intervention targetly for the family with celebral pasly to help them pass the hardly period by easing the psychological burden of the parents and reducing the children's mental grief.