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Frailties and critical issues in neuromuscular diseases highlighted by SARS-CoV-2 pandemic: how many patients are still "invisible"?
Ricci, Giulia; Torri, Francesca; Bianchi, Francesca; Fontanelli, Lorenzo; Schirinzi, Erika; Gualdani, Elisa; Francesconi, Paolo; Gagliardi, Delia; Serra, Gigliola; Mongini, Tiziana; Siciliano, Gabriele.
  • Ricci G; Department of Clinical and Experimental Medicine, University of Pisa, Pisa, Italy.
  • Torri F; Department of Clinical and Experimental Medicine, University of Pisa, Pisa, Italy.
  • Bianchi F; Department of Clinical and Experimental Medicine, University of Pisa, Pisa, Italy.
  • Fontanelli L; Department of Clinical and Experimental Medicine, University of Pisa, Pisa, Italy.
  • Schirinzi E; Department of Clinical and Experimental Medicine, University of Pisa, Pisa, Italy.
  • Gualdani E; Agenzia Regionale Toscana, ARS.
  • Francesconi P; Agenzia Regionale Toscana, ARS.
  • Gagliardi D; Foundation IRCCS Ca' Granda Ospedale Maggiore Policlinico, Neurology Unit, Milan, Italy.
  • Serra G; Clinica di Neuropsichiatria Infantile, Dipartimento di Scienze Mediche, Chirurgiche e Sperimentali, Università degli Studi di Sassari, Sassari, Italy.
  • Mongini T; Department of Neurosciences Rita Levi Montalcini, Università degli Studi di Torino, Torino, Italy.
  • Siciliano G; Department of Clinical and Experimental Medicine, University of Pisa, Pisa, Italy.
Acta Myol ; 41(1): 24-29, 2022 Mar.
Artículo en Inglés | MEDLINE | ID: covidwho-1812153
ABSTRACT
Almost 90% of neuromuscular diseases (NMDs) are classified as rare diseases, defined as conditions affecting less than 5 individuals in 10.000 (0.05%). Their rarity and diversity pose specific challenges for healthcare and research. Epidemiological data on NMDs are often lacking and incomplete. The COVID-19 pandemic has further highlighted the management difficulties of NMDs patients and the necessity to continue the program of implementation of standard of care. This article summarizes the Italian experience during pandemic.
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Texto completo: Disponible Colección: Bases de datos internacionales Base de datos: MEDLINE Asunto principal: Fragilidad / COVID-19 / Enfermedades Neuromusculares Tipo de estudio: Estudio observacional Límite: Humanos Idioma: Inglés Revista: Acta Myol Asunto de la revista: Cardiología / Fisiología Año: 2022 Tipo del documento: Artículo País de afiliación: 2532-1900-065

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Texto completo: Disponible Colección: Bases de datos internacionales Base de datos: MEDLINE Asunto principal: Fragilidad / COVID-19 / Enfermedades Neuromusculares Tipo de estudio: Estudio observacional Límite: Humanos Idioma: Inglés Revista: Acta Myol Asunto de la revista: Cardiología / Fisiología Año: 2022 Tipo del documento: Artículo País de afiliación: 2532-1900-065