The long haul: Ongoing COVID-19 symptoms and the needs of Australians

ABSTRACT

Introduction: Emerging evidence suggests an association between COVID-19 and the development of lung cancer and that those living with a lung disease may be more susceptible to persistent symptoms. Australia currently does not have an agreed definition of long-COVID, and as we transition to the endemic phase of COVID-19, we must gain a deeper understanding of the experience of Australians broadly, the influence on people living with lung disease and lung cancer, and prevalence and impact of on-going COVID-19 symptoms. To fill this evidence gap, Lung Foundation Australia surveyed Australians on their experience. Method or Implementation An online mixed-methods survey was developed to capture the retrospective and current COVID-19 and long-COVID experiences of Australians. Questions focussed on the health system, COVID-19 symptoms, long term symptoms, immunisation, trust in the information provided by Governments, health professionals, and different sectors, and more. The survey was open for 3 weeks in July 2022, with recruitment through EDMs to existing networks, and paid promotion on social media. Results or Learnings The survey received 2196 responses. Over 45% of respondents had a lung disease or lung cancer, offering a range of experiences and perspectives, including the unique and additional challenges. Health professionals were highly valued and recognised as a trusted source of information and support. Findings will be presented with a focus on those living with lung cancer. Contribution to policy, practice and/or research This survey provides a unique insight into experiences of Australians, and the differences between people with a pre-existing lung disease versus the general population. The findings will be used to advocate for funding and policy action and guide the development of resources and support for individuals with long-COVID. Findings can also be used to guide general practice care, providing greater insight into opportunities (e.g., immunisation) and challenges (e.g., unclear information) remaining.