"A Switch Went off in my Whole Body": Lived Experiences of Fatigue and Post-Exertional Malaise in Long Covid
2023 CHI Conference on Human Factors in Computing Systems, CHI 2023
; 2023.
Artículo
en Inglés
| Scopus | ID: covidwho-2326081
ABSTRACT
The growing HCI agenda on health has focused on different chronic conditions but less so on Long Covid, despite its severe impact on the quality of life. We report findings from 2 workshops with 13 people living with Long Covid, indicating the challenges of making sense of their physical, cognitive, and emotional symptoms, and of monitoring the triggers of post-exertional malaise. While most participants engage in pacing activities for the self-management of fatigue, only a few are aware of the importance of planning all their daily activities and routines in order to avoid post-exertional malaise. We conclude with design implications to support lightweight tracking and sensemaking of fatigue symptoms, novel data analytics for monitoring the triggers of post-exertional malaise and the worsening of symptoms, and support for self-management in order to prevent post-exertional malaise. © 2023 Owner/Author.
Texto completo:
Disponible
Colección:
Bases de datos de organismos internacionales
Base de datos:
Scopus
Tipo de estudio:
Investigación cualitativa
Tópicos:
Covid persistente
Idioma:
Inglés
Revista:
2023 CHI Conference on Human Factors in Computing Systems, CHI 2023
Año:
2023
Tipo del documento:
Artículo
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