Life Experiences in Neuromuscular Tracheotomized Patients in Times of Covid-19.
J Neuromuscul Dis
; 10(4): 517-529, 2023.
Artículo
en Inglés
| MEDLINE | ID: covidwho-2326918
ABSTRACT
BACKGROUND:
The management of tracheotomy at home can be very complex, affecting the patient's quality of life.OBJECTIVES:
This case series study aimed to explore the experiences of patients affected by neuromuscular diseases (NMD) concerning tracheostomy and Invasive Mechanical Ventilation (IMV) management at home during the COVID-19 health emergency in Italy.METHODS:
Semi-structured interviews and the following instruments were used Connor and Davidson Resilience Scale (CD-RISC-25); Acceptance and Action Questionnaire-II (AAQ-II); State-Trait Anxiety Inventory (STAI); Langer Mindfulness Scale (LMS). Descriptive analyses, correlations, and qualitative analyses were carried out.RESULTS:
22 patients [50% female, mean ageâ=â50.2 (SDâ=â21.2)] participated in the study. Participants who showed high levels of dispositional mindfulness in terms of novelty-seeking (râ=â0.736, pâ=â0.013) and novelty production (râ=â0.644, pâ=â0.033) were those with higher resilience. The main emotion that emerged was the fear of contagion (19 patients, 86.36%), due to the previous fragile condition, leading to a significant sense of abandonment. The tracheostomy's perception is seen in extremes as a lifesaver or a condemnation. The relationship with the health professionals moves from satisfaction to a feeling of abandonment with a lack of preparation.CONCLUSIONS:
The relationship between resilience, flexibility, state anxiety and dispositional mindfulness offers ways to reinforce tracheostomy management at home, even in critical periods when going to the hospital may be difficult.Palabras clave
Texto completo:
Disponible
Colección:
Bases de datos internacionales
Base de datos:
MEDLINE
Asunto principal:
Calidad de Vida
/
COVID-19
Tipo de estudio:
Estudio observacional
/
Investigación cualitativa
Límite:
Femenino
/
Humanos
/
Masculino
/
Middle aged
Idioma:
Inglés
Revista:
J Neuromuscul Dis
Año:
2023
Tipo del documento:
Artículo
País de afiliación:
Jnd-221597
Similares
MEDLINE
...
LILACS
LIS