Illness perception and self-management in patients with lung cancer: the mediating role of patient activation / 中华行为医学与脑科学杂志

Objective:To explore the relationship among illness perception, patient activation and self-management in patients with lung cancer, and to investigate the mediating effect of patient activation between illness perception and self-management.Methods:A total of 270 inpatients with lung cancer were selected by convenience sampling method.They were investigated by self-made social demographic questionnaire, brief illness perception questionnaire(BIPQ), patient activation measure(PAM13)and cancer patient self-management scale.SPSS 26.0 software was used for data analysis.T-test, analysis of variance, Pearson correlation analysis and mediating effect test were used for statistical analysis.Results:A total of 255 questionnaires were collected effectively.The total score of illness perception, patient activation and self-management in patients with lung cancer were (41.91±7.94), (62.31±16.39)and (142.20±20.59) .The total score of illness perception of lung cancer patients was significantly negatively correlated with the total score of patient activation and patient self-management( r=-0.652, P<0.01; r=-0.762, P<0.01), and the total score of patient activation was significantly positively correlated with the total score of self-management in patients with lung cancer( r=0.746, P<0.01). Patient activation had a partial mediating effect between illness perception and self-management in patients with lung cancer, and the mediating effect accounted for 37.10% of the total effect. Conclusion:Patient activation plays a partial mediating role between illness perception and self-management in lung cancer patients, and it is an important protective factor for patients to actively participate in self-management of disease.On the basis of assessing the illness perception and patient activation of lung cancer patients, medical staff can timely correct the negative illness perception and help them establish and maintain a high positivity level to improve their self-management.

Illness perception and influencing factors among patients with non-alcoholic fatty liver disease / 预防医学

Objective@#To investigate the perception about illness and identify its influencing factors among patients with non-alcoholic fatty liver disease ( NAFLD ) , so as to provide insights into the management of NAFLD patients. @*Methods@#NAFLD patients admitted to Hangzhou First People's Hospital Affiliated to Medical School of Zhejiang University from January to June, 2020, were selected as the study subjects, and subjects' demographic features were collected using questionnaires, including gender, age and education level. The perception about illness, coping models and social support were assessed using the Brief Illness Perception Questionnaire (BIPQ), Medical Coping Modes Questionnaire ( MCMQ ) and Social Support Rating Scale ( SSRS ), respectively, and factors affecting the perception about illness were identified using multivariable linear regression analysis among NAFLD patients.@*Results@#The 286 respondents included 151 males ( 52.80% ) and 135 females ( 47.20% ), and had a mean age of ( 55.27±10.39 ) years. The mean illness perception score was 38.55±9.21 among the respondents. The mean SSRS score was 42.90±8.64. The mean coping mode scores of confronce, avoidance and resignation were 23.51±4.30, 17.49±2.82, and 7.12±2.05, respectively. Multivariable linear regression analysis identified education level ( high school, β'=-0.216; diploma and above, β'=-0.355 ), household monthly income per capita ( β'=-0.372 ), regular exercise ( β'=-0.310 ), coping modes ( confronce, β'=-0.326; avoidance, β'=-0.191 ) and social support level ( β'=-0.259 ) as factors affecting the perception about illness among NAFLD patients.@*Conclusion@#Negative perceptions about illness are found among NAFLD patients, and household income, education level, regular exercise and coping modes are factors affecting the illness perception among NAFLD patients.

Effects of intervention based on self-regulation mode in patients with psoriasis / 中国实用护理杂志

Objective:To observe the effects of intervention based on self-regulation mode on illness perception, medical coping styles and quality of life of patients with psoriasis.Methods:Eighty patients with psoriasis from February 2018 to August 2019 in Qinhuangdao First Hospital were selected and divided into two groups by random digits table method, 40 patients in each group. The control group was given routine intervention, and the experimental group was given intervention based on self-regulation mode. The Illness Perception Questionnaire-Revised (IPQ-R) scores, Medical Coping Modes Questionnaire (MCMQ) scores, dermatologylifequalityindex (DLQI) scores and compliance of the two groups were compared before and after intervention.Results:There was no significant difference in the score of IPQ-R, MCMQ, DLQI before intervention between the two groups( P>0.05). After intervention, scores of symptoms, disease perception and causes of the disease in IPQ-R were (7.24±0.75), (162.34±20.35), (76.23±8.65) points in the experimental group and (6.08±0.72), (123.26±18.57), (52.79±7.84) points in the control group, there were significant differences between the two groups ( t values were 7.057, 8.972, 12.699, P<0.01). In the MCMQ, facing score,avoidance score and yielding score were (25.67±2.83), (12.26±1.84), (9.12±1.24) points in the experimental group, (21.76±3.89), (14.35±2.48), (10.45±1.68) points in the control group, there were significant differences between the two groups ( t values were 5.141, -4.280, -4.028, P<0.01). The DLQI scores of experimental group were significantly higher than those of control group ( t values were 2.648-8.244, P<0.05 or 0.01), and compliance of experimental group (97.5%, 39/40) was significantly better than control group (80.00%, 32/40) with statistically significant( Z value was 40.000, P<0.01). Conclusions:Intervention based on self-regulation mode can effectively reduce negative emotions of patients with psoriasis, increase their illness perception and compliance, improve their medical coping styles, self-management ability and quality of life, with positive application value.

Illness perception of patients with Type 2 Diabetes Mellitus in Veterans Memorial Medical Center - Out-Patient Department and their influence on medication adherence

Background@#Medication adherence is important in attaining good glycemic control in diabetic patients. Low medication adherence is more prevalent in developing countries like the Philippines. Understanding patients’ perceptions and health beliefs is a strategy to improve health care practitioners’ approach for better medication adherence.@*Objective@#This aims to determine illness perception of Type 2 Diabetes Mellitus patients using the Revised Illness Perception Questionnaire on Diabetes Mellitus(IPQ-R) and its influ ence on medication adherence using the Four-item Morisky Green Levine Medication Adherence Scale(MGLS) and a calendar for tracking patients’ diabetes medication intake.@*Methods@#This was conducted at Veterans Memorial Medical Center Outpatient Department. Data was collected between December 2018 - October 2019 with 311 participants. A self-administered questionnaire for sociodemographic profile, Revised Illness Perception Questionnaire on Diabetes Mellitus (IPQ-R), a calendar for tracking patients’ diabetes medication intake, and Four-item Morisky Green Levine Medication Adherence Scale (MGLS) were used.@*Results@#Patients had low Identity perception, indicating they attributed few symptoms to diabetes. They had moderate Timeline perception of diabetes as a chronic illness with an unstable cyclical course. High perception was noted in Illness Coherence, Treatment Control and Personal Control. Moderate perception was demonstrated in Consequences and Emotional Representations. Participants identified diet, hereditary, stress, own behavior and aging as Top 5 causes of diabetes. Majority had medium adherence, followed by high and low adherence levels. Medication adherence was significantly associated with income, and IPQ- R categories of Personal Control, Treatment Control, Emotional Representations and Illness Coherence.@*Conclusion@#Those with perceived control of their illness, better understanding, belief in efficacy of medications, distressing experiences and higher financial capabilities have better medication adherence. Health care practitioners may assess illness perceptions of diabetics, enhancing programs and improving patient-physician communication in guiding coping behaviors through patient education resulting to improved glycemic control.

Percepción emocional del COVID-19 en México: Estudio comparación entre la fase 1, fase 2 y medios de información

Introducción: Desde el registro de los primeros casos de COVID-19 en México, se han derivado una serie de respuestas emocionales caracterizadas por miedo y estrés. Dicho impacto emocional se debe en gran medida a la inundación de información paralela a las fases de la pandemia y la transición entre ellas y la percepción que los individuos tienen de la enfermedad. El objetivo del presente trabajo fue comparar la percepción del COVID-19 entre la fase 1 y 2 de la pandemia y entre los medios de información usados para informarse en población mexicana. Métodos: Considerando un muestreo en cadena, se realizó un estudio comparativo en el que se diseminó por medio de correo electrónico y redes sociales una batería de evaluación que respondieron 1560 participantes. Resultados: La preocupación por las consecuencias del COVID-19 y su impacto emocional incrementaron al pasar de la fase 1 a la fase 2 de la pandemia. Además, se identificó que el impacto emocional fue mayor en quienes se informaron a través de Facebook® y televisión. Conclusiones: La pandemia tendrá un impacto emocional progresivo en medida en que avancen sus fases y en la importancia de informarse en medios adecuados para prevenir consecuencias emocionales.

Background: Since the first COVID-19 cases in Mexico there have been a variety of emotional responses which have in common fear and stress. The emotional impact of COVID-19 is builded in some way because the information flooding parallel to the pandemic phases, the transition between them and illness perception. The aim of the present work was to compare the perception of COVID-19 between phase 1 and 2 of the pandemic and between the information media used to inform themselves in the Mexican population. Methods: Considering a chain sampling, a comparative study was carried out in which an evaluation battery was disseminated through email and social networks, which was answered by 1560 participants. Results The concern about the consequences of COVID-19 and its emotional impact increased when going from phase 1 to phase 2 of the pandemic. In addition, it was identified that the emotional impact was greater in those who reported through Facebook® and television. Conclusions: The pandemic will have a progressive emotional impact as its phases progress and the importance of informing oneself in adequate means to prevent emotional consequences.

Effect of illness perception on improving asthma symptoms with omega-3 fish oil therapy: Pre-post design

Perception of asthma can affect the patient's self-management and outcome treatment. The outcome is not onlydetermined by symptoms, but also by illness perception. Omega-3 in fish oil has a potential effect on asthma. Thestudy aimed to determine the effect of illness perception on improvement symptoms with fish oil, measured byAsthma-Control-Test (ACT). This research was pre-post test design and purposive sampling, used 1 g daily fish oilthen followed-up after 4 weeks, conducted in March 2017–January 2018. The relationship between ACT value andillness perception using chi square test. The study sample consisted of 26 patients. The effectiveness of omega-3showed that there was significant difference of symptoms after the therapy. It can be concluded there was effect ofillness perception relationships related to symptoms. Most of the highest illness perception regarding symptoms andsymptoms related to asthma respondents experienced on the individual values, related to symptoms are fixed. Whilethe influence of illness perception on symptoms that got significant results was how long the asthma suffered, and theillness perception on causes of asthma that were significant to changes in asthma symptoms. Omega-3 fish oil waseffective in improving asthma symptoms, but the influence of illness perception must also be a concern.

Adesão ao Tratamento, Resiliência e Percepção de Doença em Pessoas com HIV, / Treatment Adherence, Resilience and Illness Perception in People with HIV

Resumo O objetivo deste estudo foi investigar variáveis preditoras da adesão ao tratamento antirretroviral entre aspectos sociodemográficos, clínicos e psicológicos (resiliência e percepção de doença) em pessoas com o vírus da imunodeficiência humana (HIV). Participaram 155 pacientes, sendo 72,9% homens. Roteiros de entrevista sobre aspectos sociodemográficos e clínicos e instrumentos validados para a população brasileira foram aplicados. Três variáveis foram preditoras da adesão: resiliência, percepção de doença como preditor negativo, e idade, totalizando 29% de variância explicada. O estudo tem implicações para a prática de psicólogos e de equipes de saúde que atuam na área, com base na implementação de intervenções visando à adesão e ao autocuidado, bem como à adaptação e à resiliência em pessoas que vivem com HIV.

Abstract The objective of this study was to investigate predictive variables of adherence to antiretroviral treatment among sociodemographic, clinical and psychological aspects (resilience and perception of disease) in people living with the human immunodeficiency virus (HIV). Participants were 155 patients, 72.9% men. Interview scripts about sociodemographic and clinical aspects and validated instruments for the Brazilian population were applied. Three variables were predictors of adherence: resilience, perceived illness as a negative predictor, and age, with 29% explained variance. The study has implications for the practice of psychologists and health teams working in the field, based on the implementation of adherence and self-care interventions, as well as adaptation and resilience in people living with HIV.

Percepción de enfermedad, características de personalidad y dinámica familiar en niños y adolescentes afectados por VIH asistentes a instituciones prestadoras de servicios de salud / Illness perception, personality characteristics and family dynamic in children and teenagers affected by HIV, attended in institutions providing health services

Resumen Objetivo: Describir la percepción de enfermedad, características de personalidad y la dinámica familiar de niños y adolescentes afectados por VIH, teniendo en cuenta sus características sociodemográficas y la revelación o no del diagnóstico. Método: Es un estudio de tipo cualitativo, con diseño de teoría fundamentada. La muestra estuvo conformada por 14 niños y adolescentes afectados por VIH y diagnosticados desde su nacimiento, entre 6 y 15 años de edad. El muestreo fue no probabilístico intencional o con fines especiales. Se utilizó el test de Machover, el test de la familia y un cuestionario de preguntas abiertas y cerradas sobre percepción de enfermedad. Resultados: Se encontró que los participantes que no tienen conocimiento sobre su diagnóstico, a diferencia de los que han pasado por un proceso de revelación, poseen una autoimagen perturbada con tendencias a baja autoestima y autoconcepto pobre. A su vez, las conversaciones y los dibujos realizados por ellos sugieren sensación y tendencia a la soledad, inseguridad, deterioro a nivel de las relaciones familiares e interpersonales, evidenciando la existencia de una percepción de enfermedad negativa, que puede incidir en su desarrollo personal y social corroborando lo encontrado por Instone (2000), Trejos, Reyes, Bahamón y Alarcón (2014), Pérez Quiroz, et al. (2013) y Ehrenzweig (2005). Conclusiones: El presente estudio reconoce la importancia de llevar a cabo procesos adecuados de revelación del diagnóstico para el VIH en niños y adolescentes, permitiendo la mejora de su calidad de vida en pro de su desarrollo biopsicosocial teniendo en cuenta la normalización del ajuste psicológico y mantenimiento del cumplimiento terapéutico, atendiendo a las directrices internacionales sobre el tema de la revelación.

Abstract Objective: This paper aims to describe the perception of illness, personality characteristics and a family dynamic of children and adolescents affected by HIV, considering their social-demographic characteristics and the disclosure or non-disclosure of the diagnosis. Method: A qualitative study, with a grounded theory design was conducted. For data collection, 14 children and adolescents affected by HIV diagnosed from birth, between 6 and 15 years of age were sampled. This sampling was intentional non-probabilistic or special purposes. The Machover test, the family test and a questionnaire asking open and closed questions to describe illness perception were used. Results: As a result, it was evident that participants who have no knowledge of their diagnosis, unlike those who have gone through a disclosure process, have a disturbed self-image with tendencies to low self-esteem and poor self-concept. Likewise, conversations and drawings made by them showing tendency to loneliness, insecurity, and deterioration of family and interpersonal relationships, assuming a perception of negative illness, which can affect their personal and social development. Confirming Instone (2000) findings, Trejos, Reyes, Bahamón and Alarcon (2014), Pérez Quiroz, et al. (2013) and Ehrenzweig (2005). Conclusion: This study recognizes the importance of carrying out adequate diagnostic processes for children and adolescents affected with HIV, allowing the improvement of their quality of life and also, benefiting their psychosocial development, taking into account the normalization of psychological adjustment and preservation of therapeutic adherence. In accordance with international guidelines of HIV disclosure.

Relationship among aggressive trait,patient-physician trust and illness perception of patients / 中华行为医学与脑科学杂志

Objective To investigate the relationship between aggressive trait of patients,patient-physician trust and illness perception. Methods Totally 500 patients were recruited from different medical departments from eight hospitals in Guangdong and 384 samples' valid data were obtained. The aggressive trait of patients,patient-physician trust and illness perception were assessed with the Buss-Perry aggression questionnaire( BPAQ), the Wake Forest physician trust scale ( WFPTS), and the brief illness perception questionnaire(BIPQ) respectively. SPSS 23. 0 and AMOS 20. 0 were used for data analysis and structural e-quation model construction. Results Pearson correlation analysis showed that the BPAQ (53. 2±13. 9) and BIPQ(38. 6±9. 1) were negatively correlated respectively with WFPTS (35. 3±6. 1) and benevolence (17. 6 ±3. 2) and technical competence (17. 8±3. 3),(r=-0. 14~-0. 18,P<0. 01). And there was positive corre-lation between BPAQ scores and BIPQ score(r=0. 37,P<0. 01). Mediation effect test showed that patient-physician trust mediated the associations between patient aggression and illness perception (B=0. 039,95% CI= (0. 002,0. 120)). Conclusion Aggressive trait and patient-physician are significantly related with ill-ness perception. Patient-physician trust exerts mediating effect on the relationship between aggression of pa-tients and illness perception.

The effect of motivational interviewing on the illness perception in patients after percutaneous coronary intervention / 中国实用护理杂志

Objective To evaluate the impact of motivational interviewing (MI) on the illness perception in patients after percutaneous coronary intervention (PCI). Methods Totally 160 patients after PCI were randomly divided into two groups. The patients in the control group (n=85) received routine education, while patients in the intervention group (n=75) were received 4 times MI (during hospitalization, before discharge, 1 month after discharge, 3 months after discharge), 20 min for each time. Illness perception was appraised before and after the intervention in both groups. Results The mean scores of illness perception in the intervention group, including symptom perception, disease perception and cause perception, were 5.85±1.75, 3.65±0.66, 2.85±0.30,which were significantly higher than that of the control group after the intervention, 4.84 ± 1.09, 2.92 ± 0.61, 2.48 ± 0.31, the differences were significantly statistical (t=2.248, 3.717, 3.926, all P<0.05). Conclusions MI is much more effective than routine education on the improvement of illness perception in patients after PCI.

Illness perception in patients with somatic symptom disorder: a qualitative study / 中华行为医学与脑科学杂志

Objective@#To explore the perception and evaluation of patients with somatic symptom disorder about their own diseases and treatment, and to provide theoretical basis for design of illness perception questionnaire for patients with somatic symptoms disorder.@*Methods@#A semi-structured interview was conducted among 15 initial and untreated patients with somatic symptom disorder using the descriptive qualitative study. The data were sorted, encoded, classified, summarized and refined using MAXQDA10 software.@*Results@#Three main themes and six sub-themes of illness perception in patients with somatic symptom disorder were analyzed and sorted out: (1) symptom recognition: including three sub-themes, low understanding of the disease and denial of somatic symptoms as mental illness; (2)drug taking concerns: including two sub-themes worrying about side effects of drugs, drug addiction and having difficulty to stick to the long-term regular medication; (3)emotional reaction: including the obvious negative emotions of depression and helplessness sub-theme.@*Conclusion@#Patients with somatic symptom disorder have a general bias in illness perception, which has a potential adverse effect on treatment compliance. Therefore, it is necessary for clinical medical staff to early estimate patients’illness perception, and carry out mental health education and rational emotional behavior therapy.

Illness perception in patients with somatic symptom disorder:a qualitative study / 中华行为医学与脑科学杂志

Objective To explore the perception and evaluation of patients with somatic symptom disorder about their own diseases and treatment,and to provide theoretical basis for design of illness percep-tion questionnaire for patients with somatic symptoms disorder. Methods A semi-structured interview was conducted among 15 initial and untreated patients with somatic symptom disorder using the descriptive quali-tative study. The data were sorted,encoded,classified,summarized and refined using MAXQDA10 software. Results Three main themes and six sub-themes of illness perception in patients with somatic symptom dis-order were analyzed and sorted out:(1) symptom recognition:including three sub-themes,low understanding of the disease and denial of somatic symptoms as mental illness;(2)drug taking concerns:including two sub-themes worrying about side effects of drugs,drug addiction and having difficulty to stick to the long-term reg-ular medication;(3)emotional reaction:including the obvious negative emotions of depression and helpless-ness sub-theme. Conclusion Patients with somatic symptom disorder have a general bias in illness percep-tion,which has a potential adverse effect on treatment compliance. Therefore,it is necessary for clinical med-ical staff to early estimate patients’illness perception,and carry out mental health education and rational e-motional behavior therapy.

The effect of motivational interviewing on the illness perception in patients after percutaneous coronary intervention / 中国实用护理杂志

Objective@#To evaluate the impact of motivational interviewing (MI) on the illness perception in patients after percutaneous coronary intervention (PCI).@*Methods@#Totally 160 patients after PCI were randomly divided into two groups. The patients in the control group (n=85) received routine education, while patients in the intervention group (n=75) were received 4 times MI (during hospitalization, before discharge, 1 month after discharge, 3 months after discharge), 20 min for each time. Illness perception was appraised before and after the intervention in both groups.@*Results@#The mean scores of illness perception in the intervention group, including symptom perception, disease perception and cause perception, were 5.85±1.75, 3.65±0.66, 2.85±0.30, which were significantly higher than that of the control group after the intervention, 4.84±1.09, 2.92±0.61, 2.48±0.31, the differences were significantly statistical (t=2.248, 3.717, 3.926, all P<0.05).@*Conclusions@#MI is much more effective than routine education on the improvement of illness perception in patients after PCI.

Beliefs about childhood cancer: perceptions of survivors and mothers / Crenças sobre o câncer infantil: percepção de sobreviventes e mães / Creencias sobre el cáncer en niños: percepción de sobrevivientes y madres

Beliefs regarding a disease refer to mental schemes people construct based on their direct or indirect experiences and that are related to their health behavior and self-regulation. Such beliefs help childhood cancer survivors understand their behavior in their follow-up treatment. This study's purpose was to examine the beliefs concerning childhood cancer among 27 survivors and 49 mothers, who completed sociodemographic surveys and questionnaires addressing disease perceptions via an online platform. Results reveal that mothers, more frequently than survivors, perceived childhood cancer as a chronic disease with cyclical symptoms, with more negative consequences and emotional representations. The mothers also reported having greater understanding regarding the disease and more strongly believed in personal and treatment control in comparison to survivors. The conclusion is that the fact that survivors more positively perceived childhood cancer may indicate they re-signified their experiences in an adaptive manner.

As crenças sobre a doença referem-se a esquemas mentais que as pessoas constroem a partir de sua experiência direta ou indireta e que se relacionam com o seu comportamento em saúde e autorregulação. Em sobreviventes de câncer infantil, as crenças ajudam a compreender seus comportamentos no período pós-tratamento. Objetivou-se examinar as crenças sobre o câncer infantil em 27 sobreviventes e 49 mães que responderam a questionários sociodemográficos e de percepção da doença numa plataforma on-line. Os resultados apontaram que as mães perceberam o câncer infantil como uma doença crônica, com sintomas cíclicos, com consequências e representação emocional mais negativas que os sobreviventes. Ainda, as mães referiram compreender os aspectos relacionados à doença e acreditam no controle pessoal e do tratamento num nível mais elevado que os sobreviventes. Conclui-se que o fato de os sobreviventes perceberem o câncer infantil de maneira mais positiva pode indicar uma ressignificação da experiência de forma adaptativa.

Las creencias sobre la enfermedad se refieren a esquemas mentales que las personas construyen a partir de su experiencia directa o indirecta y que se relacionan con su conducta en salud y autorregulación. En sobrevivientes de cáncer en la niñez, sus creencias ayudan a comprender sus conductas en el periodo post-tratamiento. El objetivo fue examinar las creencias sobre el cáncer en la niñez en 27 sobrevivientes adultos jóvenes y 49 madres que contestaron a cuestionarios sociodemográfico y de percepción de la enfermedad en un sitio web. Los resultados mostraron que las madres percibieron el cáncer en la niñez como una enfermedad crónica, con síntomas cíclicos, con consecuencias y representación emocional más negativa que los sobrevivientes. Además, las madres refirieron comprender la enfermedad y creer en el control personal y del tratamiento a un nivel más alto que los sobrevivientes. Se concluye que el hecho de que los sobrevivientes perciban el cáncer en la niñez de manera más positiva pueda indicar una nueva significación de la experiencia de manera positiva.

Control Effect of Illness Perception on Depression and Quality of Life in Patients with Hemodialysis: Using Structural Equation Modeling

PURPOSE: This study aimed to evaluate the effect of illness perception on depression and quality of life in patients with hemodialysis. METHODS: This is a cross-sectional study using structural equation modeling. Depression, quality of life and cognitive and emotional illness perceptions were measured by the Center for Epidemiologic Studies Depression-10 (CESD-10), Short Form-36 version 2 (SF-36v2), and Brief Illness Perception Questionnaire (BIPQ) in 272 hemodialysis patients. RESULTS: Prevalence of depression was 76.1%, and higher in female patients on hemodialysis. Cognitive illness perception had effect on depression and quality of life, while emotional illness perception had effect only on depression. Quality of life was explained 69.6% through depression (β=−.74, t=−8.17) and cognitive illness perceptions (β=.21, t=3.06), while depression was explained 40.5% through cognitive (β=−.34, t=−5.99) and emotional (β=.59, t=9.37) illness perceptions. CONCLUSION: In the inevitable choice of dialysis, illness perception could decrease depression and improve quality of life in hemodialysis patients.

Construção de um material educativo para a prevenção do câncer de colo do útero / Construcción de un material educativo para la prevención del cáncer cervical / Educational booklet construction to prevent cervical cancer

O câncer de colo de útero (CCU) é o terceiro tumor mais incidente nas mulheres brasileiras, e as ações de prevenção primária podem reduzir a mortalidade pela doença. Profissionais devem buscar meios para que a comunicação em saúde seja efetiva, utilizando metodologias práticas e científicas. O objetivo deste artigo é descrever o processo de elaboração de um material educativo produzido por profissionais da psicologia, enfermagem e design, direcionado a usuárias da atenção básica. O conteúdo do material foi desenvolvido a partir de uma pesquisa empírica sobre as percepções de mulheres e seus comportamentos frente ao CCU. A construção do material baseou-se nas teorias de autorregulação em saúde e no human-centered design. O produto deste estudo foi a confecção de uma cartilha em formato de flor, com quatro histórias que abarcam os principais conteúdos relacionados aos comportamentos de prevenção do CCU (AU).

Cervical cancer (CC) is the third most frequent tumor among Brazilian women, and primary prevention care can reduce mortality from the disease. Health professionals should seek resources for communication to be effective, using practical and scientific methodologies. The purpose of the paper is to describe the process of developing an educational booklet prepared by professionals of psychology, nursing and design, aimed at primary care users. The booklet content was produced starting from an empirical research on the perceptions of women and their behavior to deal the CC. The booklet construction was based on health self-regulation model and Human-centered design theories. The product of this study was the construction of a booklet flowershaped, with four stories covering the main factors related to the conduct of preventive CC.(AU).

El cáncer cervical (CC) es el tercer tumor más incidente en mujeres brasileñas, y acciones de prevención primaria pueden reducir la mortalidad por la enfermedad. Los profesionales deben buscar formas para que la comunicación en salud sea efectiva, utilizándose de metodologías prácticas y científicas. El objetivo del artículo es describir el proceso de elaboración de un material educativo producido por profesionales de psicología, enfermería y design, para usuarias de la atención básica. El contenido del material fue producido a partir de una investigación empírica sobre las percepciones de mujeres y sus conductas en relación al CC. La construcción del material fue basado en las teorías de autorregulación en salud y human-centred design. El producto fue la confección de una dobladura en forma de flor, con cuatro historias que engloban los principales contenidos relacionados a las conductas de prevención del CC (AU).

Validación de la Encuesta de Percepción de Enfermedad Revisada (Illness Perception Questionnaire) entre pacientes con patologías crónicas médicas y psiquiátricas / Validation of Illness Perception Survey Revised (Illness Perception Questionnaire) among patients with medical and psychiatric chronic diseases

MARCO TEÓRICO: La Percepción de Enfermedad es una variable importante en la evolución de los pacientes. Existen métodos de evaluación cualitativa de éste parámetro, sin embargo, no son aplicables a la población chilena por no estar adaptados al lenguaje local y cotidiano. OBJETIVO: Realizar una traducción del Illness Perception Questionnaire Revised, conservando la validez y fiabilidad original. MATERIALES Y MÉTODOS: Traducción y retraducción de la escala por experto. Piloteo de evaluación a 33 pacientes con enfermedades crónicas. Encuesta a 112 pacientes (49 diabéticos, 37 hipertensos y 33 esquizofrénicos) todos pertenecientes al CRS Hospital El Pino. CONCLUSIONES: En base al porcentaje de concordancia obtenido (95%) entre la versión original y la traducida a la lengua española y al reporte de los entrevistadores con respecto a la comprensibilidad manifestada por los pacientes, podemos concluir que la traducción por nosotros aplicada cumple con los criterios de validez.

THEORETICAL FRAMEWORK: The perception of disease is an important variable in the patient evolution. There are methods of qualitative evaluation of this parameter, however, are not applicable to the Chilean people for not being adapted to the local and everyday language. OBJECTIVE: A translation of the Revised Illness Perception Questionnaire, preserving the original set reliability and validity. MATERIALS AND METHODS: Translation and back translation of the scale by an expert. Piloting assessment to 33 patients with chronic diseases. Survey of 112 patients (49 diabetic and 33 hypertensive schizophrenics 37) all belonging to the CRS Hospital Pino. CONCLUSIONS: Based on the percentage of concordance obtained (95%) between the original version and the translated version in the Spanish language and the interviewers' report regarding the comprehensibility expressed by the patients, we can conclude that the translation applied by us meets the criteria of validity

Health-related quality of life, illness perception, happiness and negative emotions in rheumatoid arthritis patients / Qualidade de Vida Relacionada com a Saúde, Percepção de Doença, Felicidade e Emoções Negativas em Pacientes com Diagnóstico de Artrite Reumatoide / Calidad de vida relacionada con la salud, percepción de enfermedad, felicidad y emociones negativas en pacientes con diagnostico de artritis reumatoide

Abstract The aim of this study was to evaluate the relationship between quality of life related to health, illness perception, happiness, anxiety and depression in 62 patients diagnosed with rheumatoid arthritis. The study design was descriptive correlational. Instruments: The Quality of Life in Rheumatoid Arthritis Scale -QOL-RA, Brief Illness Perception Questionnaire -IPQ-B, Subjective Happiness Scale -SHS and The Hospital Anxiety and Depression Scale -HADS. Results: There was a high quality of life related to health in these patients, as some domains of QOL-RA such as support, social life and mood have demonstrated a significant impact on HRQOL. In the multiple linear regression model negative weight of anxiety and positive happiness with QOL-RA were appreciated. Conclusion: psychological factors such as anxiety and happiness have significant weight on the perceived quality of life of patients with RA.

Resumo O propósito deste estudo foi avaliar as relações entre a qualidade de vida relacionada com a saúde (QVRS), a percepção de doença, a felicidade, a ansiedade e a depressão em 62 pacientes com diagnóstico de artrite reumatoide da cidade de Bogotá, Colômbia. O estudo foi descritivo correlacional; utilizaram-se os instrumentos Escala de qualidade de vida em artrite reumatoide (QDV-RA), Questionário de Percepção de Doença (IPQ-B), Escala Subjetiva de Felicidade (SHS) e Escala Hospitalar de Ansiedade e Depressão (HAD); e como resultados verificou-se que houve uma favorável CVRS nestes pacientes possivelmente devido à presença de algumas dimensões do QOL-RA, como o apoio, a vida social e o estado de ânimo, os quais demonstraram ter um impacto importante sobre a qualidade de vida. Com o modelo de regressão linear múltipla verificou-se um peso negativo para a ansiedade e um positivo para a felicidade com o QDV-RA. Conclui-se que estes fatores psicológicos negativos e positivos têm um peso relevante sobre a percepção de qualidade de vida dos pacientes com AR.

Resumen El propósito de este estudio fue evaluar las relaciones entre la calidad de vida relacionada con la salud (CVRS), la percepción de enfermedad, la felicidad, la ansiedad y la depresión en 62 pacientes con diagnóstico de artritis reumatoide de la ciudad de Bogotá, Colombia. El diseño del estudio fue descriptivo correlacional; se utilizaron los instrumentos Escala de calidad de vida en artritis reumatoide (QOL-RA), Cuestionario de Percepción de Enfermedad (IPQ-B), Escala Subjetiva de Felicidad (SHS) y Escala Hospitalaria de Ansiedad y Depresión (HAD); y como resultados se encontró que hubo una favorable CVRS en estos pacientes posiblemente debido a la presencia de algunas dimensiones del QOL-RA, como el apoyo, la vida social y el estado de ánimo, los cuales han demostrado tener un impacto importante sobre la calidad de vida. Con el modelo de regresión lineal múltiple se encontró un peso negativo para la ansiedad y uno positivo para la felicidad con el QOL-RA. Se concluye que estos factores psicológicos negativos y positivos tienen un peso relevante sobre la percepción de calidad de vida de los pacientes con AR.

Illness Perception Level of Patients with Coronary Heart Disease / 中国康复理论与实践

Objective To investigate the level about illness perception in patients with coronary heart disease. Methods From July to De-cember, 2015, 198 inpatients with coronary heart disease who were admitted into hospitals twice or more were enrolled. They were assessed with Illness Perception Questionnaire-Revised (IPQ-R). Results The score of common symptoms was (4.55±1.64). The symptoms, for exam-ple, chest pains, uncomfortable feeling in chest, cold sweat, flustered and breathlessness were most frequently experienced and most often identified. For the illness perception part, the scores on subscales of treatment control and consequences were higher than 3, which was the neutral point. For the cause dimension part, the highest scores was (3.38 ± 0.90) in diet or eating habits, followed by (3.38 ± 0.89) in aging. Among these factors, immune factors had the highest mean score, followed by stress factor. Conclusion The level of illness perception in pa-tients with coronary heart disease was in the middle level, and individual differences were obvious. The awareness of the disease and the in-tervention of the patient should be strengthened.

Illness perception of patients with chronic pain: An internal validation of the subscales of the Filipino version of the Revised Illness Perception Questionnaire (IPQ-R) in a sample of adult patients with chronic pain presenting for pain management at the Philippine General Hospital (PGH)

OBJECTIVE: The present study aimed to determine the internal validity of the different subscales of the Filipino version of Revised Illness Perception Questionnaire (IPQ-R) among patients with chronic pain.METHODS: A cross-sectional study involving chronic pain outpatients at the Philippine General Hospital Pain Clinic and inpatients admitted between September 2016 to November 2016 was done. Data were obtained through self-administered Filipino version of the IPQ-R. Internal structure of the questionnaire was analyzed using Cronbach's alpha coefficients and confirmatory factor analysis.RESULTS: A total of 143 patients with chronic pain participated; mean age was 54.9 years. The consistencies of the Filipino version of IPQ-R dimensions for consequence, illness coherence, timeline (cyclical), and emotional representation were within conventional limits with small variations from the original English IPQ-R. However, timeline (acute/chronic), personal control,and treatment control scales failed to reach consistency. By excluding seven items nevertheless, there was noted improvement in the Cronbach's alpha of the corresponding scales.CONCLUSION:The inter-factor correlations of the Filipino version were relatively similar to those reported in the original English IPQ-R. The modified questionnaire showed good validity and could be a valuable instrument in the assessment of illness perceptions in the Filipino health care setting.