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1.
Braz. j. oral sci ; 21: e228274, jan.-dez. 2022. tab
Article in English | LILACS, BBO | ID: biblio-1392982

ABSTRACT

Parents are responsible for their children's health care, and their oral health-related knowledge, attitude, and habits can affect their children's oral health. Aim: The objective of this study was to evaluate parents' knowledge, attitudes, and practices regarding their children's oral health. Methods: In this study, a sample of 398 parents of 4- to 6-year-old children completed a self-designed questionnaire. The parents' oral health-related knowledge, attitudes, and practices were assessed. Children's oral health was evaluated using decayed, missing, and filled tooth index (dmft). Data were analyzed using the SPSS version 23.0 with a p < 0.05 as statistically significant. Categorical data were reported as frequency (%), and continuous data were reported as mean ± SD. Moreover, Spearman's correlation, multiple regression, Mann-Whitney test, Kruskal Wallis test, and Kolmogorov-Smirnov test were used. Results: Most of the parents had a satisfactory level of knowledge and positive attitudes regarding their children's oral health. The knowledge and attitude scores were higher among parents with higher education (p<0.001), and the knowledge score was higher among mothers (p=0.004). Also, the attitude score was correlated with the number of decayed, missed, and filled teeth of children (p=0.01, p=0.04, and p=0.007, respectively). However, there was no significant relationship between dmft and the parents' knowledge, attitudes, and practices using multiple regression. The mean dmft of children was 6.86 ± 3.56, and most of the parents had poor oral health-related practices. Conclusion: The parents' level of knowledge and attitudes were satisfactory, but they had poor oral health practices. Moreover, there was no significant relationship between children's oral health and their parents' level of knowledge, attitudes, and practices. Educating programs and strategies are needed to enhance parents' oral health-related attitudes and knowledge and, more importantly, change their oral health practices


Subject(s)
Humans , Male , Female , Adult , Middle Aged , Parents , Child , Oral Health , Health Education, Dental , Surveys and Questionnaires , Knowledge
2.
Arch. argent. pediatr ; 120(6): 391-397, dic. 2022. tab
Article in English, Spanish | LILACS, BINACIS | ID: biblio-1397709

ABSTRACT

Introducción. Los trastornos en el neurodesarrolloinfantil constituyen un 10 % de las causasde discapacidad en la niñez. La búsquedade atención médica configura itinerariosterapéuticos, entendidos como los procesos de búsqueda y atención para el cuidado de la salud, donde surgen oportunidades de diagnósticoy tratamiento. El objetivo fue explorar dichos itinerarios para comprender las oportunidades y barreras que se presentan para instaurarterapias y pautas de crianza que promuevan el neurodesarrollo. Población y métodos. Estudio cualitativomediante entrevistas en profundidad a madres y padres de niños (de junio de 2018 a noviembre de 2019). El análisis se realizó sobre la base del modelo social de la discapacidad y del de desarrollo infantil propuesto por Vygotsky. Resultados. Se realizaron 16 entrevistas.Considerando la edad de inicio de los itinerarios terapéuticos y el diagnóstico, se identificaron dos grupos: aquellos que los comenzaron desde el nacimiento hasta los 2 años (inicio precoz) y quienes lo hicieron a partir de los 3 años (inicio en la primera infancia e infancia tardía). En el primero se habilita tempranamente la búsqueda de tratamiento, mientras que en el segundo se prolongaron en el tiempo las decisiones sobre el inicio y/o el tipo de terapias. El inicio tardío se acompañó de dificultades en la escuela, períodosde incertidumbre, angustia y/o conflictosfamiliares por las complejidades de la crianza. Conclusiones. Los itinerarios terapéuticos seiniciaron en forma precoz en algunos casos y tardía en otros. El inicio de tratamientos permitióincorporar herramientas para acortar la brecha de incongruencia entre las líneas biológica y cultural de desarrollo.


Introduction. Childhood neurodevelopmental disorders account for 10% of the causes of childhood disability. The search for medical care leads to therapeutic itineraries routes taken by individuals to seek health care where diagnostic and treatment opportunities arise. Our objective was to explore these itineraries in order to understand the opportunities and barriers to the implementation of therapies and child rearing patterns promoting neurodevelopment. Population and methods. Qualitative study using in-depth interviews with children's parents (between June 2018 and November 2019). The analysis was based on the social model of disability and Vygotsky's approach to child development. Results. A total of 16 interviews were conducted. Considering the time of diagnosis and the age when the therapeutic itinerary started, 2 groups were identified: those who started from birth to 2 years old (early initiation) and those who started from 3 years old (late childhood initiation). In the first group, the search for treatment starts at an early stage, while in the other group, decisions on the initiation and/or type of treatments are prolonged over time. Late initiation was accompanied by difficulties in school, periods of uncertainty, distress and/or family conflicts due to the complexities of parenting. Conclusions. Therapeutic itineraries started early in some cases and at a later stage in others. The initiation of treatments made it possible to use tools to bridge the gap of discrepancies between the biological and cultural lines of development.


Subject(s)
Humans , Child, Preschool , Child , Disabled Children , Neurodevelopmental Disorders/etiology , Neurodevelopmental Disorders/therapy , Parents , Child Rearing , Parenting
4.
Arch. argent. pediatr ; 120(5): 340-345, oct. 2022.
Article in English, Spanish | LILACS, BINACIS | ID: biblio-1391190

ABSTRACT

Es frecuente observar niños pequeños jugando con un teléfono celular o una tablet. No obstante, la posibilidad de tener un dispositivo electrónico, cómo y cuándo pueden usarlo, depende de los adultos. La preocupación radica en el incremento de esta práctica en detrimento de la actividad y de la interacción social a través de la palabra y del contacto con el otro, como así también en otros aspectos de su salud (sobrepeso y alteraciones en el sueño). Aún no está del todo claro el modo en que el uso generalizado de pantallas afecta el desarrollo. Tampoco se conocen los mecanismos psicológicos y físicos que producirían estos efectos. Este escrito propone presentar una visión actual sobre el efecto de la exposición temprana a pantallas en el desarrollo integral del niño y la percepción de los padres. Sería propicio implementar proyectos de educación para padres y tutores que promuevan la adecuada estimulación de los niños en su hogar


It is common to see young children playing with a mobile phone or a tablet. However, the decision about the availability of an electronic device and how and when to use it depends on adults. The concern is the increase of such practice at the expense of activities and social interaction by talking and being in contact with others, as well as other aspects of children's health (overweight and sleep disturbances). It is yet unclear how the generalized use of screens affects development. The physical and psychological mechanisms of such effects are also unknown. The purpose of this article is to provide a current view of the effect of early exposure to screens on the comprehensive development of children and parents' perceptions. It would be conducive to implement education projects for parents and legal guardians that promote an adequate child stimulation at home.


Subject(s)
Humans , Infant , Child, Preschool , Adult , Sleep Wake Disorders , Screen Time , Parents/psychology , Family , Educational Status
5.
Alerta (San Salvador) ; 5(2): 146-152, jul. 22, 2022.
Article in Spanish | LILACS, BISSAL | ID: biblio-1380071

ABSTRACT

El dolor en pediatría es un problema de salud pública que afecta al 78 % de pacientes hospitalizados y está frecuentemente asociado a punciones, por lo que es necesario un control rápido y efectivo. Existen en la actualidad estrategias psicológicas y físicas de estimulación sensorial para abordarlo. Se pretende describir el uso de estas como coadyuvantes en el manejo del dolor agudo por punción en pediatría. Se realizó una revisión narrativa de artículos originales y revisiones bibliográficas. El mecanismo del dolor involucra a las fibras C y a las fibras Aδ, que responden al dolor por punción. Entre las estrategias innovadoras se encuentra el dispositivo Buzzy®, que actúa mediante la teoría de compuerta del dolor, desviando la atención del dolor hacia un estímulo sensorial placentero (frío y vibración) que disminuye la intensidad en comparación con anestésicos locales (p < 0,001); así mismo, la realidad virtual desvía la atención del niño hacia un estímulo placentero, visual o auditivo, creando un ambiente tridimensional y produciendo analgesia por distracción en comparación al control (p < 0,05). El uso de estrategias no farmacológicas como coadyuvantes para el manejo de dolor por punción son efectivas para disminuir el dolor en el paciente pediátrico, así como el estrés y la ansiedad, tanto en los padres como en el personal de salud


Pediatric pain is a public healthcare problem present in 78 % of hospitalized patients and it is frequently associated to needles. Fast and effective controls are needed, therefore, sensory stimulation and psychological strategies have been developed. The aim of this study was to describe the use of non-pharmacological strategies as adjuvants in needle associated children pain management. A review was made searching through original articles and other reviews. Pain mechanism involves C fibers and Aδ fibers, which respond to short term needle pain. Buzzy® device is among the innovative physical strategies to relieve pain, which acts according to the pain threshold theory, diverting attention from pain to a pleasurable sensory stimulus (cold and vibration) decreasing its intensity when compared to topical anesthesia (p < 0,001). Meanwhile psychological strategies such as virtual reality divert the child's attention to a pleasant visual and auditory stimulus. It creates a tridimensional environment with an electronic device, decreasing pain while distracting the child when compared to the control group (p < 0,05). The use of innovative non-pharmacological strategies as adjuvants for needle pain management is effective decreasing children pain and reducing stress and anxiety in parents and healthcare workers


Subject(s)
Pediatrics , Punctures , Public Health , Pain Management , Parents , Health Personnel , Needles
6.
Rev. SPAGESP ; 23(1): 103-116, jan.-jun. 2022. tab
Article in Portuguese | LILACS, INDEXPSI | ID: biblio-1356773

ABSTRACT

RESUMO O uso das mídias digitais por bebês é um fenômeno recente. Algumas evidências apontam para associações do uso de telas na primeira infância e desfechos adversos no desenvolvimento. O objetivo deste estudo é apresentar o processo de construção, implementação e avaliação do estudo-piloto de uma intervenção educativa para pais, profissionais da saúde e educadores sobre uso de mídias digitais na primeira infância. A intervenção segue o modelo de educação continuada, consistiu em quatro encontros presenciais no formato expositivo seguido de discussão em grupo e foi avaliada em termos da aprendizagem dos participantes e satisfação com o curso. Participaram 16 pessoas, majoritariamente profissionais de saúde e educação. Os resultados indicaram melhora significativa nos conhecimentos do tema e satisfação com a intervenção, sendo discutidos de forma a subsidiar o desenvolvimento de novas intervenções sobre a temática.


ABSTRACT The use of digital media by babies is a recent phenomenon. Some evidence highlights associations between the use of screens in early childhood and adverse developmental outcomes. This study aims to report the development, implementation, and evaluation processes of an educational intervention for parents, health professionals, and educators on the use of digital media in early childhood. The intervention follows the model of continuing education, with four face-to-face meetings and presentations followed by group discussions. It was evaluated by participants' learning and satisfaction with the course. Sixteen people participated, mostly health and education professionals. The results indicate a significant improvement in participants’ knowledge and high satisfaction rates. Findings are discussed to support the development of new interventions on the subject.


RESUMEN El uso de medios digitales por parte de los bebés es un fenómeno reciente. Algunas evidencias apuntan asociaciones entre el uso de pantallas en la primera infancia y los resultados adversos del desarrollo. El objetivo del presente estudio es presentar el proceso de construcción, implementación y evaluación del estudio piloto de una intervención educativa para padres, profesionales de la salud y educadores sobre el uso de medios digitales en la primera infancia. La intervención sigue el modelo de educación continua y consistió en cuatro reuniones presenciales en formato expositivo, seguidas de discusión grupal y aún fue evaluada en términos del aprendizaje y satisfacción de los participantes con el curso. Participaron 16 personas, en su mayoría identificadas como profesionales de la salud y de la educación. Los resultados indicaron una mejora significativa en el conocimiento del tema y satisfacción con la intervención, siendo discutida con el fin de apoyar el desarrollo de nuevas intervenciones sobre el tema.


Subject(s)
Humans , Infant , Child, Preschool , Parents , Child Development , Growth and Development , Video-Audio Media , Learning
7.
Más Vita ; 4(2): 50-63, jun. 2022.
Article in Spanish | LILACS, LIVECS | ID: biblio-1392069

ABSTRACT

La percepción de padres ante los programas de vacunación de los niños para la prevención de enfermedades, así como las campañas de información y conocimiento sobre las vacunas, motiva el interés científico por conocer y evaluar los factores relacionados al grado de conocimiento, aptitudes y fuentes de información de la población sobre las vacunas, siendo la inmunización un método que permite adquirir inmunidad contra las enfermedades comunes y mortales y reduce gastos por tratamientos para la mejoría de la salud. Objetivo: Describir la percepción de los padres sobre la vacunación infantil. Metodología: Investigación cualitativa, a través del estudio de revisión de contenido relacionado con el descriptor vacunación, donde se recopila la información de interés según su aparición en la búsqueda. El estudio está basado en el paradigma positivista con observación y registro de información relevante con el tema. Resultados: La falta de información sobre los riesgos y beneficios de la vacunación es un factor que induce a la desconfianza e inseguridad respecto a las vacunas; gran parte de los padres considera útil la vacuna, necesaria y beneficiosa pero prevalece la idea que la inmunización puede ser algo peligroso y con efectos indeseables y secuelas graves por información mediática no bién conducida. Conclusiones: Diversos estudios señalan factores que impiden que los padres de los niños cumplan con los esquemas de vacunación, entre estos la falta de información y conocimiento sobre las vacunas, que evitan las enfermedades en los menores reforzando el sistema inmunológico, así como, otra de las razones es la falta de vacunas en los centros asistenciales, que genera desinterés y dificulta el cumplimiento de los programas de vacunación, además, servicios lentos y poca empatía del personal que presta atención en los centros de salud aumentan la percepción negativa sobre la vacunación(AU)


The perception of parents regarding the vaccination programs for children for the prevention of diseases, as well as the information and knowledge campaigns about vaccines, motivates the scientific interest in knowing and evaluating the factors related to the degree of knowledge, aptitudes and sources of information for the population about vaccines, immunization being a method that allows acquiring immunity against common and deadly diseases and reduces expenses for treatments to improve health. Objective: To describe the perception of parents about childhood vaccination. Materials and Methods Qualitative research, through a content review study related to the vaccination descriptor, where the information of interest is compiled according to its appearance in the search. The study is based on the positivist paradigm with observation and recording of information relevant to the subject. Results: The lack of information about the risks and benefits of vaccination is a factor that induces mistrust and insecurity regarding vaccines; A large part of the parents considers the vaccine useful, necessary and beneficial, but the idea prevails that immunization can be something dangerous and with undesirable effects and serious sequelae due to misguided media information. Conclusnios: Various studies point to factors that prevent parents of children from complying with vaccination schedules, including lack of information and knowledge about vaccines, which prevent diseases in minors by strengthening the immune system, as well as another of The reasons are the lack of vaccines in health centers, which generates disinterest and makes it difficult to comply with vaccination programs, in addition, slow services and little empathy of the personnel who provide care in health centers increase the negative perception about vaccination(AU)


Subject(s)
Parents , Perception , Immunization Schedule , Vaccination , Health Centers , Disease , Disease Prevention
8.
J. bras. psiquiatr ; 71(2): 126-132, abr.-jun. 2022. tab
Article in Portuguese | LILACS | ID: biblio-1386075

ABSTRACT

OBJETIVO: Investigar a saúde mental de pais com filhos pequenos durante a pandemia de COVID-19. MÉTODOS: Foram utilizados questionários elaborados pelo Google Forms, no qual foram aplicados os dados sociodemográficos, e as escalas EADS-21, IES-R, PSQI-BR e WHOQOL-BREF. As análises estatísticas foram realizadas no software estatístico SPSS 21.0 para Windows. Para descrição da amostra, foram utilizadas análises descritivas. Em todos os testes, foi considerada a significância estatística de 0,05. Os 327 participantes foram divididos em três grupos: voluntários sem filhos (Grupo 1), com filhos entre 0 e 6 anos (Grupo 2) e com filhos de 7 anos ou mais (Grupo 3), dos quais todos eram residentes da região Sul do Brasil. RESULTADOS: Os grupos com maior vulnerabilidade em relação à sua saúde mental é o de participantes sem filhos e com filhos de 0 a 6 anos, com maiores escores para as escalas de depressão, ansiedade e estresse, e estresse pós-traumático, em comparação com o grupo com filhos de 7 anos ou mais. CONCLUSÕES: Mesmo que os dados mostrem que todos os grupos estão dentro da normalidade para as escalas aplicadas, faz-se necessário atentar para a saúde mental da população em maior sofrimento psíquico, seja a partir de estratégias desenvolvidas por profissionais de rede de saúde (SUS) e/ou da assistência social (SUAS), seja por projetos municipais/estaduais na busca pela promoção da saúde mental na rede.


OBJECTIVE: Explore the mental health of parents with young children during the COVID-19 pandemic. METHODS: We used questionnaires prepared by Google Forms, applying sociodemographic data, and also the EADS-21, IES-R, PSQI-BR and WHOQOL-BREF scales were applied. Statistical analyzes were performed using SPSS 21.0 statistical software for Windows. To describe the sample, descriptive analyzes were used. In all tests, a statistical significance of 0.05 was considered. Of the 327 participants, they were divided into three groups: volunteers without children (Group 1), with children aged 0 to 6 years (Group 2), and with children aged 7 or over (Group 3). All volunteers were residents from South of Brazil. RESULTS: The groups with the greatest vulnerability in relation to their mental health are those of participants without children and parents with children aged 0 to 6 years, with higher scores for the depression, anxiety and stress, and post traumatic stress symptoms, compared to parents with children aged from 7 years or more. CONCLUSION: even though the data show that all groups are within the normal range for the scales applied, it is necessary to pay attention to the mental health of the population in greater psychological distress, either from strategies developed by health professionals (SUS) and/or or social assistance (SUAS), either by municipal/state projects in the search for the promotion of mental health.


Subject(s)
Humans , Female , Adolescent , Adult , Middle Aged , Young Adult , Parents/psychology , Social Isolation/psychology , Mental Health , Pandemics , COVID-19/prevention & control , Anxiety/psychology , Parent-Child Relations , Stress, Psychological , Surveys and Questionnaires/standards , Reproducibility of Results , Depression , Patient Health Questionnaire , Sociodemographic Factors , Manifest Anxiety Scale
9.
Rev. chil. ter. ocup ; 23(1): 91-104, jun. 2022. tab
Article in Spanish | LILACS | ID: biblio-1398814

ABSTRACT

El equilibrio ocupacional de la población en general está relacionado con la buena salud, sin embargo, la población infantil fue uno de los grupos más afectados por el confinamiento y las medidas de distanciamiento social durante la pandemia de COVID-19. Esta investigación tuvo como objetivo conocer el impacto ocupacional que experimentaron niñas y niños a causa del confinamiento por COVID-19 según la percepción de sus madres y padres en la ciudad de Punta Arenas, Chile. A través de un enfoque cualitativo y alcance exploratorio descriptivo se entrevistó a 25 madres y 1 padre de niñas y niños entre 6 a 12 años, estudiantes de un establecimiento educacional subvencionado que se encontraban en confinamiento en la ciudad de Punta Arenas. Según su percepción, se establece que el confinamiento ocasionó algunos cambios positivos en las actividades de la vida diaria instrumentales y negativos en las ocupaciones de juego, participación social, educación, actividades de la vida diaria de alimentación, descanso y sueño de sus hijas e hijos. Madres y padres se enfrentaron a realizar diversas adaptaciones y modificaciones como organización del tiempo, entorno e implementación de materiales, para favorecer el desempeño ocupacional. Se concluye que debido a la incertidumbre e inestabilidad emocional con relación al ambiente y sus cambios, desde la mirada de la Terapia Ocupacional, resulta relevante el apoyo de las madres y padres para reestructurar las rutinas y adaptarlas al encierro prolongado dentro del hogar, respetando y organizando horarios. El añadir actividades recreativas y fomentar el juego en el ocio y tiempo libre favoreció el equilibrio ocupacional y la sensación de satisfacción de niñas y niños junto a sus familias.


The occupational balance of the general population is related to good health; however, the child population was one of the groups most affected by confinement and social distancing measures during the COVID-19 pandemic. The objective of this research was to determine the occupational impact experienced by children as a result of COVID-19 confinement as perceived by their mothers and fathers in the city of Punta Arenas, Chile. Through a qualitative approach and descriptive exploratory scope, 25 mothers and 1 father of children between 6 and 12 years old, students of a subsidized educational establishment who were in confinement in the city of Punta Arenas, Chile, were interviewed. According to their perception, it was established that confinement caused some positive changes in instrumental daily life activities and negative changes in their children's activities of play, social participation, education, daily life activities of eating, resting and sleeping. Mothers and fathers were faced with making various adaptations and modifications such as organization of time, environment and implementation of materials, in order to favor occupational performance. It is concluded that due to the uncertainty and emotional instability in relation to the environment and its changes, from the point of view of occupational therapy, the support of mothers and fathers is relevant to restructure routines and adapt them to the prolonged confinement at home, respecting and organizing schedules. Adding recreational activities and encouraging play in leisure and free time favored occupational balance and the feeling of satisfaction of children and their families.


Subject(s)
Humans , Male , Female , Child , Parents , Students , Quarantine , Occupational Therapy , COVID-19 , Mothers , Chile , Qualitative Research
10.
Rev. Eugenio Espejo ; 16(2): 35-46, 20220504.
Article in Spanish | LILACS | ID: biblio-1369931

ABSTRACT

El estado de la funcionalidad de la familia influye en la calidad nutricional de sus miembros. El objetivo del presente estudio fue describir el estado nutricional de población pediátrica y la funcionalidad familiar en una unidad educativa pública en la provincia Cotopaxi, Ecuador, durante 2020. Se desarrolló una investigación descriptiva transversal, en la que participaron 179 familias de alumnos con edades entre 5 y 19 años, cuyos padres o tutores legales aportaron los datos de interés. La población pediátrica estuvo conformada por 91 niños/as de 5 a 9 años y 88 adolescentes de 10 a 19 años. El 54,7% correspondió al sexo femenino. En este contexto predominó el estado nutricional normal en los menores de edad y las familias funcionales (57%). La funcionalidad familiar se asoció significativamente con el grupo etario y el estado nutricional atendiendo a la talla/edad. Sin embargo, esa variable resultó independiente con respecto al estado nutricional según IMC/edad.


The state of family functionality influences the nutritional quality of its members. This study aimed to describe the nutritional status of the pediatric population and family functionality in a public educational unit in the Cotopaxi province, Ecuador, during 2020. A cross-sectional descriptive research was developed. The population was constituted by 179 families of students aged between 5 and 19 years old, whose parents or legal guardians provided the data of interest. The pediatric population consisted of 91 children from 5 to 9 years old and 88 adolescents from 10 to 19 years old. 54.7% corresponded to the female sex. In this context, normal nutritional status prevailed in minors and functional families (57%). Family functionality was significantly associated with age group and nutritional status according to height/age. However, this variable was independent with respect to nutritional status according to BMI/age


Subject(s)
Humans , Male , Female , Child , Students , Family , Nutritional Status , Parents , Minors , Legal Guardians
11.
J. oral res. (Impresa) ; 11(1): 1-14, may. 11, 2022. ilus, tab
Article in English | LILACS | ID: biblio-1399600

ABSTRACT

Aim: To assess parental oral health knowledge, attitude, practice (KAP), perceptions of their children's oral health status, and explore the barriers to dental care utilization among Libyan parents living in Malaysia. Material and Methods: A cross-sectional study was conducted among Libyan parents of children aged 1- 7 years old who lived in Malaysia. A 63-items questionnaire was constructed, validated, and pretested. Six hundred self-administered questionnaires were distributed Data were analyzed using IBM SPSS version 22.0. A generalized Linear Model was used to test the possible relationships between KAP scores and different sociodemographic factors. A significant level for all the statistical tests was predetermined at p≤0.05. Results: A total of 381 questionnaires were included, of which fathers' responses constituted 189 (49.6%), and mothers' responses constituted 192 (50.4%). Most of the parents exhibited good oral health knowledge (77.2%), positive attitudes (86.4%), and were adherent to good oral health practice (78.7%) with mean values of 10.6 (SD=1.8), 9.5 (SD=1.5), and 7.9 (SD=1.4) respectively. Gender, age, and income had statistically significant relationships (p<0.05) with KAP scores. The majority (81.1%) of parents rated their child's oral health as good. More than one-third of parents (35.7%) perceived no need for dental care, and 18.6% perceived no need to treat the primary teeth as they will be replaced. Conclusion: Good Knowledge and positive attitudes towards oral health are not necessarily translated into favorable practices. The lack of perceived need and low value attributed to primary teeth created barriers to seek dental care services among the majority of surveyed parents. Attention must be directed to behavior change strategies rather than providing oral health education alone to improve the children's oral health outcomes.


Objetivo: Evaluar el conocimiento, la actitud y la práctica de la salud bucal de los padres (CAP), las percepciones del estado de salud bucal de sus hijos y explorar las barreras para la utilización de la atención dental entre los padres libios que viven en Malasia. Material y Métodos: Se realizó un estudio transversal entre padres libios de niños de 1 a 7 años que vivían en Malasia. Se construyó, validó y probó previamente un cuestionario de 63 ítems. Se distribuyeron 600 cuestionarios autoadministrados. Los datos se analizaron con IBM SPSS versión 22.0. Se utilizó un modelo lineal generalizado para probar las posibles relaciones entre las puntuaciones KAP y diferentes factores sociodemográficos. Se predeterminó un nivel de significancia para todas las pruebas estadísticas en p? 0,05. Resultados: Se incluyeron un total de 381 cuestionarios, de los cuales las respuestas de los padres constituyeron 189 (49,6%) y las respuestas de las madres 192 (50,4%). La mayoría de los padres exhibieron buenos conocimientos sobre salud bucal (77,2 %), actitudes positivas (86,4 %) y se adhirieron a buenas prácticas de salud bucal (78,7 %) con valores medios de 10,6 (DE=1,8), 9,5 (DE=1,5) , y 7,9 (DE=1,4) respectivamente. El género, la edad y los ingresos tuvieron relaciones estadísticamente significativas (p<0,05) con las puntuaciones KAP. La mayoría (81,1%) de los padres calificaron la salud bucal de sus hijos como buena. Más de un tercio de los padres (35,7%) no percibieron la necesidad de atención dental y el 18,6% no percibieron la necesidad de tratar los dientes primarios, ya que serán reemplazados. Conclusión: El buen conocimiento y las actitudes positivas hacia la salud bucal no necesariamente se traducen en prácticas favorables. La falta de necesidad percibida y el bajo valor atribuido a los dientes primarios crearon barreras para buscar servicios de atención dental entre la mayoría de los padres encuestados. La atención se debe dirigir a las estrategias de cambio de comportamiento en lugar de brindar educación sobre salud bucal únicamente para mejorar los resultados de salud bucal de los niños.


Subject(s)
Humans , Male , Adult , Middle Aged , Young Adult , Health Knowledge, Attitudes, Practice , Oral Health , Parents , Perception , Cross-Sectional Studies , Surveys and Questionnaires , Dental Care , Sociodemographic Factors , Malaysia , Mothers
12.
Rev. bioét. (Impr.) ; 30(1): 72-81, jan.-mar. 2022. tab
Article in Portuguese | LILACS | ID: biblio-1376484

ABSTRACT

Resumo Objetivou-se analisar a percepção de pais de crianças com síndrome de Down acerca de estigma social e refletir sobre o tema à luz da bioética. Trata-se de estudo de elaboração e validação de instrumento de medida cujo teste-piloto contou com 106 participantes. Os resultados apontaram que o estigma inferioriza os afetados, acarretando desvantagem social, desemprego, diminuição de recursos financeiros, não aceitação, intolerância, invisibilidade social, menor acesso a serviços de saúde e piora da qualidade de vida. Isso gera efeitos negativos na saúde dos genitores. Concluiu-se que o estigma está presente na sociedade, e por isso faz-se necessário formular políticas públicas que conscientizem os pais e garantam seu direito à saúde. Reconhece-se que apesar de ser mais um elemento de adoecimento, o estigma não deve ser subestimado.


Abstract The aim of this study was to analyze the perception of parents of children with Down syndrome about social stigma and reflect on the theme in the light of bioethics. This study consists of the elaboration and validation of a measurement instrument whose pilot test had 106 participants. Results showed the stigma creates feelings of inferiority on those affected, causing social disadvantage, unemployment, decreased financial resources, non-acceptance, intolerance, social invisibility, less access to health services and worse quality of life. This generates negative effects on the parents' health. It was concluded that stigma is present in society, so public policies that raise awareness among parents and guarantee their right to health are required. Despite being another element of illness, stigma should not be underestimated.


Resumen El objetivo era analizar la percepción de los padres de niños con síndrome de Down sobre el estigma social y reflexionar sobre el tema a la luz de la bioética. Se trata de un estudio de elaboración y validación de un instrumento de medición en cuya prueba piloto contó con 106 participantes. Los resultados señalaron que el estigma inferioriza a los afectados, lo que conlleva desventajas sociales, desempleo, disminución de recursos financieros, no aceptación, intolerancia, invisibilidad social, menor acceso a servicios de la salud y el empeoramiento de la calidad de vida. Esto genera efectos negativos en la salud de los padres. En conclusión el estigma está presente en la sociedad, por lo que es necesario formular políticas públicas que concienticen a los padres y garanticen su derecho a la salud. Hay que reconocer que a pesar de ser un elemento más de enfermedad, el estigma no debe subestimarse.


Subject(s)
Parents , Perception , Child , Caregivers , Down Syndrome , Social Stigma , Right to Health , Human Rights
13.
Med. infant ; 29(1): 10-16, Marzo 2022. Tab, ilus
Article in Spanish | LILACS, BINACIS, UNISALUD | ID: biblio-1366813

ABSTRACT

El consentimiento informado es un proceso en el que un paciente libre y bien informado o sus representantes autorizan o no un procedimiento médico. Objetivos: El objetivo del estudio fue explorar el grado de satisfacción de padres de pacientes y profesionales con respecto al CI implementado en diferentes áreas del hospital. Métodos: Estudio observacional y descriptivo mediante encuesta anónima, a médicos y padres de pacientes atendidos en el hospital entre enero y julio de 2018. Resultados: Se obtuvieron 158 respuestas de profesionales y 139 de padres. Para el 50% de los padres el CI es un proceso para mejorar la calidad. El 81% de ellos consideró que recibió la información, la comprendieron y pudieron aclarar dudas. El 89% recibió la información del médico y el 59% en el lugar adecuado. De los profesionales, 57% consideró al CI como un proceso de información para mejorar la calidad. El 3% estimó que los padres comprenden la información siempre, el 66% consideró que el CI contiene la información suficiente y 13% le entregó una copia a la familia. Conclusiones: El grado de satisfacción de los padres en relación al CI es alto mientras que el de los profesionales es moderado. Hay que continuar trabajando en el proceso de comunicación entre ambos grupos (AU)


Informed consent is a process based on which a free and wellinformed patient or his/her representatives decide whether or not to authorize a medical procedure. Objectives: The aim of the study was to explore the degree of satisfaction of parents of patients and professionals regarding the IC implemented in different areas of the hospital. Methods: Observational and descriptive study using an anonymous survey of physicians and parents of patients treated at the hospital between January and July 2018. Results: the survey was responded by 158 physicians and 139 parents. Overall, 50% of the parents considered that the IC is part of a quality improvement process; 81% of them found they received adequate information, understood it, and were able to clarify doubts. Eighty-nine percent received the information from the physician and 59% in the appropriate area. Of the professionals, 57% considered the IC to be an information process to improve quality; 3% felt that parents always understand the information; 66% felt that the IC contains sufficient information; and 13% gave the family a copy. Conclusions: A degree of satisfaction with the IC was found in parents while it was moderate among physicians. It is necessary to continue working on the communication process between both groups (AU)


Subject(s)
Humans , Parents , Surveys and Questionnaires , Patient Satisfaction , Communication , Hospitals, Pediatric , Informed Consent , Medical Staff , Prospective Studies , Observational Study
14.
Chinese Journal of Pediatrics ; (12): 421-425, 2022.
Article in Chinese | WPRIM | ID: wpr-935714

ABSTRACT

Objective: To translate the food allergy quality of life-parental burden (FAQL-PB) scale into Chinese and test its reliability and validity among the caregivers of children with food allergy. Methods: The caregivers of 222 children with food allergy were enrolled by convenient sampling from October 2020 to October 2021 in the Children's Hospital Affiliated to Chongqing Medical University. The forward-backward translation and cultural adaptation of the original FAQL-PB scale was performed in accordance with Brislin's model. Item analysis was used to select items. The validity of the questionnaire was analyzed with the item-level content validity and the exploratory factors analysis. And the internal consistency coefficient, split-half reliability and test-retest reliability were used to evaluate the reliability of the questionnaire. Results: The Pearson correlation coefficients of the scores between each item and total scale ranged from 0.72 to 0.88 (P<0.01). The item-level content validity index (I-CVI) ranged from 0.83 to 1.00, scale-level content validity index/universal agreement (S-CVI/UA) was 0.94, and scale-level content validity index/average (S-CVI/Ave) was 0.99. Exploratory factor analysis revealed that Chinese version of FAQL-PB scale could be classified into two dimensions: emotional distress and limitations on life, with the accumulative variance contribution rate of 74.08%. The Cronbach's α coefficient, split-half reliability coefficient and test-retest reliability of the Chinese version of FAQL-PB scale were 0.97, 0.98 and 0.71, respectively. Conclusion: The Chinese version of FAQL-PB scale is proved to be reliable and eligible, and can be used as a specific tool to investigate the quality of life in family of children with food hypersensitivity.


Subject(s)
Child , China , Food Hypersensitivity/diagnosis , Humans , Parents/psychology , Quality of Life , Reproducibility of Results
15.
Article in Chinese | WPRIM | ID: wpr-940996

ABSTRACT

OBJECTIVE@#To explore potential categories of parental social support for young parents under the coronavirus disease 2019 (COVID-19) epidemic, and to examine correlations of different types of parents' social support with parental burnout.@*METHODS@#In April 2020, we conducted an online voluntary survey among young parents across China with scales and a self-designed questionnaire. The latent profile analysis method was used to analyze parents' received social support and perceived social support. The social support categories were taken as independent variables and parental burnout as dependent variables, and multiple regression analysis was carried out to explore the relationship between received social support, perceived social support and parental burnout. Finally, the moderating effect of resilience between social support groups and parental burnout was discussed.@*RESULTS@#The results of latent profile analysis revealed three potential types of received social support, namely isolate, normal, and multi-support and the proportions of the respondents with the three profiles were 14.1%, 78.0%, and 7.9%. Four potential types of perceived social support, namely, indigent, medium, affluent and divergent and the proportions of the respondents with the four profiles were 13.7%, 29.6%, 25.3%, and 31.3%. Among them, the parents with divergent perceived social support had more perception of social support from the couple, family and relatives, but less perception of social support from net-friend, social organizations and the government. Regression analysis showed that there was no statistically significant correlation between different profiles of received social support and parental burnout, and among the groups of perceived social support, there was a statistically significant correlation between indigent and divergent types of social support and parental burnout. The divergent parents had lower levels of parental burnout compared with indigent (β=-0.120, P=0.003). Also, resilience moderated the effect of divergent perceived social support and parental burnout. Compared with the parents with low resilience, the parents with high resilience perceived divergent social support with lower parenting burnout.@*CONCLUSION@#There are prominent latent types of received social support and perceived social support under epidemic. People with divergent perceived social support (more perceived supports from partner, family and friends) are prone to have a relatively lower risk of parental burnout. Parents with higher resilience will be more sensitive to the support of close acquaintances, and can better resist parental burnout.


Subject(s)
Burnout, Psychological/epidemiology , COVID-19/epidemiology , China/epidemiology , Humans , Parents , Social Support
16.
Article in Chinese | WPRIM | ID: wpr-940979

ABSTRACT

OBJECTIVE@#To explore the association between de novo mutations (DNM) and non-syndromic cleft lip with or without palate (NSCL/P) using case-parent trio design.@*METHODS@#Whole-exome sequencing was conducted for twenty-two NSCL/P trios and Genome Analysis ToolKit (GATK) was used to identify DNM by comparing the alleles of the cases and their parents. Information of predictable functions was annotated to the locus with SnpEff. Enrichment analysis for DNM was conducted to test the difference between the actual number and the expected number of DNM, and to explore whether there were genes with more DNM than expected. NSCL/P-related genes indicated by previous studies with solid evidence were selected by literature reviewing. Protein-protein interactions analysis was conducted among the genes with protein-altering DNM and NSCL/P-related genes. R package "denovolyzeR" was used for the enrichment analysis (Bonferroni correction: P=0.05/n, n is the number of genes in the whole genome range). Protein-protein interactions among genes with DNM and genes with solid evidence on the risk factors of NSCL/P were predicted depending on the information provided by STRING database.@*RESULTS@#A total of 339 908 SNPs were qualified for the subsequent analysis after quality control. The number of high confident DNM identified by GATK was 345. Among those DNM, forty-four DNM were missense mutations, one DNM was nonsense mutation, two DNM were splicing site mutations, twenty DNM were synonymous mutations and others were located in intron or intergenic regions. The results of enrichment analysis showed that the number of protein-altering DNM on the exome regions was larger than expected (P < 0.05), and five genes (KRTCAP2, HMCN2, ANKRD36C, ADGRL2 and DIPK2A) had more DNM than expected (P < 0.05/(2×19 618)). Protein-protein interaction analysis was conducted among forty-six genes with protein-altering DNM and thirteen genes associated with NSCL/P selected by literature reviewing. Six pairs of interactions occurred between the genes with DNM and known NSCL/P-related genes. The score measuring the confidence level of the predicted interaction between RGPD4 and SUMO1 was 0.868, which was higher than the scores for other pairs of genes.@*CONCLUSION@#Our study provided novel insights into the development of NSCL/P and demonstrated that functional analyses of genes carrying DNM were warranted to understand the genetic architecture of complex diseases.


Subject(s)
Asians , Case-Control Studies , Cleft Lip/genetics , Cleft Palate/genetics , Genetic Predisposition to Disease , Genome-Wide Association Study , Genotype , Humans , Mutation , Parents , Polymorphism, Single Nucleotide , Whole Exome Sequencing
17.
Article in Chinese | WPRIM | ID: wpr-928749

ABSTRACT

OBJECTIVE@#To analyze the clinical efficacy of haploidentical hematopoietic stem cell transplantation (haplo-HSCT) by using parental donors on thalassemia patients.@*METHODS@#The 13 thalassemia patients treated by haplo-HSCT using parental donors in our hospital from July 1, 2016, to July 1, 2020 were retrospectively reviewed. Hematopoiesis reconstitution, the incidence of GVHD, infections and the long-term survival of the patients were analyzed.@*RESULTS@#Twelve of the 13 patients were successfully implanted, the success rate of implantation was 92.3%. The median time of neutrophil and platelet engraftment was 12.5 days (range, 9-22 days) and 21 days (range,12-34 days), respectively. One patient achieved primary graft failure. Three (25%) patients developed to acute GVHD (aGVHD) and achieved complete remission after treatment. Chronic GVHD developed in three (25%) patients, one of them was extensive and under treatment, while one patient developed to severe bacterial infection (7.7%). CMV viremia was diagnosed in two patients (15.4%). There were no patients developed to CMV disease. Three (23.1%) patients achieved EB viremia after transplantation, one of them developed to EBV-related lymphocytic proliferative disease, while there were no patients showed invasive fungal infection. At the last follow-up, all patients survived, twelve of them were free from transfusion dependency. There were no transplant-related deaths. Projected overall and thalassemia-free survival at three years was 100% and 92.3%, respectively.@*CONCLUSION@#The transplant protocol of haplo-HSCT by using parental donors in patients with thalassemia has reliable source of donors, high incidence of successful implantation and low incidence of GVHD, which can be used as an effective way to increase the source of donors in children with thalassemia.


Subject(s)
Child , Cytomegalovirus Infections , Graft vs Host Disease , Hematopoietic Stem Cell Transplantation , Humans , Parents , Retrospective Studies , Thalassemia/therapy , Transplantation Conditioning/methods , Treatment Outcome , Viremia
18.
Article in English | WPRIM | ID: wpr-928603

ABSTRACT

OBJECTIVES@#To investigate the current status of sleep initiation patterns, influencing factors for sleep initiation patterns, and the influence of sleep initiation patterns on sleep quality in infants and young children.@*METHODS@#A total of 521 infants and young children, aged 0-35 months, who underwent physical examination at the outpatient service of the Department of Growth and Development in Shenzhen Bao'an Women's and Children's Hospital Affiliated to Jinan University were enrolled as subjects. A self-designed questionnaire and Brief Infant Sleep Questionnaire were used to collect the information on family background, parenting behaviors, and sleep quality in the past one week. A multivariate logistic regression analysis was used to evaluate the influencing factors for sleep initiation patterns. A multiple linear regression analysis was used to evaluate the influence of sleep initiation patterns on the number of nighttime awakenings.@*RESULTS@#Among the 521 infants and young children, 258 (49.5%) were breastfed/bottle fed to initiate sleep, 62 (11.9%) were rocked/held to initiate sleep, 39 (7.5%) slept independently, and 162 (31.1%) initiated sleep accompanied by parents. The multivariate logistic regression analysis showed that the children with breastfeeding and a younger age were more likely to be breastfed/bottle fed to initiate sleep (P<0.05) and that the children with a younger age were also more likely to be rocked/held to initiate sleep (P<0.05). The multiple linear regression analysis showed that sleep initiation with breastfeeding/bottle feeding significantly increased the number of nighttime awakenings (P<0.05).@*CONCLUSIONS@#Most infants and young children initiate sleep by being breastfed/bottle fed, rocked/held, or accompanied. The sleep initiation pattern is associated with the age of children and whether they are still breastfeeding. Sleep initiation with breastfeeding/bottle feeding can increase the number of nighttime awakenings. io.


Subject(s)
Breast Feeding , Child , Child, Preschool , Cognition , Female , Humans , Infant , Infant, Newborn , Parents , Sleep , Sleep Quality
19.
Article in Chinese | WPRIM | ID: wpr-928455

ABSTRACT

OBJECTIVE@#To investigate the parental-origin verification of fetal CNVs in the setting of prenatal diagnosis.@*METHODS@#182 families were recruited in this study. All the pregnant women underwent transabdominal amniocentesis or cordocentesis, and the amniotic fluid or cord blood samples were then subjected to karyotyping and chromosomal microarray analysis (CMA) respectively. The peripheral blood specimens of fetal parents were also tested by CMA for determining the parental-origin of fetal CNVs. Then we followed up the clinical outcomes of the fetuses.@*RESULTS@#Of the 182 fetuses, 163 (89.6%) had parental-origin CNVs, and 19 (10.4%) had de novo CNVs. 149 (91.4%) of the parental-origin CNVs were classified into the variant of uncertain significance (VUS) before parental-origin tests. After parental source verification, 137 (91.9%) of these VUS cases were changed into likely benign cases. Among the 163 cases of parental-origin CNVs, 122 (74.8%) fetuses were born healthy. Among the 19 de novo cases, 9 of these families chose to terminate the pregnancy.@*CONCLUSION@#The majority of inherited CNVs detected by CMA had a tendency to be benign, and the parental source verification could assist the elucidation of clinical significance of CNVs in prenatal diagnosis.


Subject(s)
Chromosome Aberrations , DNA Copy Number Variations , Female , Humans , Karyotyping , Microarray Analysis , Parents , Pregnancy , Prenatal Diagnosis
20.
Article in English | WPRIM | ID: wpr-927486

ABSTRACT

INTRODUCTION@#Infant gastroesophageal reflux disease (GERD) is a significant cause of concern to parents. This study seeks to describe GERD prevalence in infants, evaluate possible risk factors and assess common beliefs influencing management of GERD among Asian parents.@*METHODS@#Mother-infant dyads in the Singapore PREconception Study of long-Term maternal and child Outcomes (S-PRESTO) cohort were prospectively followed from preconception to 12 months post-delivery. GERD diagnosis was ascertained through the revised Infant Gastroesophageal Reflux Questionnaire (I-GERQ-R) administered at 4 time points during infancy. Data on parental perceptions and lifestyle modifications were also collected.@*RESULTS@#The prevalence of infant GERD peaked at 26.5% at age 6 weeks, decreasing to 1.1% by 12 months. Infants exclusively breastfed at 3 weeks of life had reduced odds of GERD by 1 year (adjusted odds ratio 0.43, 95% confidence interval 0.19-0.97, P=0.04). Elimination of "cold or heaty food" and "gas producing" vegetables, massaging the infant's abdomen and application of medicated oil to the infant's abdomen were quoted as major lifestyle modifications in response to GERD symptoms.@*CONCLUSION@#Prevalence of GERD in infants is highest in the first 3 months of life, and the majority outgrow it by 1 year of age. Infants exclusively breastfed at 3 weeks had reduced odds of GERD. Cultural-based changes such as elimination of "heaty or cold" food influence parental perceptions in GERD, which are unique to the Asian population. Understanding the cultural basis for parental perceptions and health-seeking behaviours is crucial in tailoring patient education appropriately for optimal management of infant GERD.


Subject(s)
Female , Gastroesophageal Reflux/epidemiology , Humans , Infant , Infant, Newborn , Male , Parents/psychology , Prevalence , Risk Factors , Singapore/epidemiology
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